#ArthritisThenNow infographic now available! 

 

Building on the #ArthritisThenNow Twitter chat, we developed an infographic to describe how arthritis treatments and life has changed for people living with inflammatory arthritis over the last 20 years. It’s important that we don’t forget how far we’ve come both on a personal level and to ensure policy makers understand this evolution too.

Check out the infographic on our website!

What have we been up to?

Plain language research summaries available! CAPA Board Members Therese Lane and Janet Gunderson worked with PhD students at McMaster University to develop plain language research summaries. Through this collaborative effort, Therese and Janet identified topics of interest to people with arthritis and provided feedback to the students on the summaries. Don’t forget to check them out on our website!

Webinar on the Disability Tax Credit – Thank you to everyone who attended our free webinar about the Disability Tax Credit (DTC). In case you missed the event, the presentation is available on our website. You can apply for the DTC up until December 31, 2020 and still be eligible for a one time payment of $600. There are also other benefits available like the Canada Recovery Sickness BenefitCanada Recovery Caregiving Benefit, and the Canada Recovery Benefit – read the factsheet about these programs on our website! 

COVIDArthritis presentation – We have worked to support the arthritis community throughout the pandemic and spoke about our efforts at the annual CADTH symposium. We discussed how we worked to address drug shortages, provided evidence-based resources, supported research and engaged the arthritis community. Stay tuned as the #COVIDArthritis presentation will soon be posted to the CADTH website

Pain Taskforce report is out! Over the last year, the Canadian Pain Taskforce conducted extensive consultations about the gaps and challenges, best and promising practices, and elements of an improved approach to preventing and managing chronic pain. The results of these consultations is out and summarized in this report. Over the next months, the taskforce will continue to increase awareness of chronic pain and to build relationships and networks for change across the country.

ACR poster presentations – CAPA Board Member, Emily Sirotich, attended the virtual American College of Rheumatology conference in early November. She made oral and poster presentations on a variety of topics of interest to patients including drug shortages during the pandemic, patient engagement in the COVID-19 Global Rheumatology Alliance and more. Learn more and access the presentations on our website!

Get Involved!

Study on quality of arthritis care –  Dr. Claire Barber, a researcher at the University of Calgary, is inviting adults with RA to participate in a study that is looking at quality of arthritis care. The purpose of this study is to test and create a survey to improve the quality of arthritis care. Learn more about the study by visiting our website today! 

Consultation on Occupational Therapy Competencies – Are you interested in occupational therapy and identifying the competencies for the profession? Consider participating in a consultation session the week of November 23 to have your say from a patient point of view. Register on the CORECOM website today!

Write to your MPP to #SaveTAPNow – The Arthritis Program (TAP) at Southlake Regional Health Centre is being shut down in January 2021 and patients will lose essential care. You can help by telling the Ontario government to provide the funding to keep TAP open. Share your perspective by using the sample templates and Twitter messaging available here

Stay Informed!

MedEffect advisories on NSAID’s and Plaquenil – Once a medication is on the market, Health Canada regularly monitors drugs on the market for new safety concerns. As part of this program, they issued advisories for NSAID’s taken during the second trimester of pregnancy and Plaquenil interactions with other medications. Read these advisories today and get informed!

Biosimilar implementation in Alberta – The Alberta government announced a non-medical switching policy for biosimilars with implementation in January 2021. They have expanded the program to include rituximab biosimilars, which are used for Rheumatoid Arthritis, Granulomatosis with polyangiitis (GPA) and Microscopic polyangiitis (MPA). Get informed about how this might impact your care by visiting their website

Webinar on patient engagement in research – Patients are increasingly involved in clinical trials as advisors and part of research teams. Clinical Trials Ontario are inviting interested patients and investigators to join a 1.5 hour virtual patient oriented research training session that will provide an overview of the decision aids and an opportunity for feedback. Visit the CTO website to register – multiple dates are available to accommodate your schedule.

Website and social media updates – We are regularly updating our websiteFacebookTwitterInstagram and YouTube channel with new information. We developed COVID-19 information resources for people with arthritis and a video of CAPA Board member, Michael Kuluva, with Dr. Janet Pope. Don’t forget to follow us on these social media channels to keep up to date on the latest arthritis and advocacy information!