Join our Twitter Chat on October 12!

Join us in celebrating World Arthritis Day (WAD) by participating in an international Twitter Chat on #arthritisatwork. The chat will be held on October 12 at 1 p.m. and it will be co-hosted by UK-based patient advocate Simon Stones. The Twitter Chat will be based on the workplace wisdom of people living with arthritis and we’ll discuss how we can better support people with arthritis at work. Read more about the questions on our website!

 

What have we been up to?

Make pain an election issue! Pain is an issue that affects all people with arthritis and this is why we need to make an election issue. One in five Canadians live with pain and people with chronic pain have worse quality of life compared to other chronic diseases. Consider sending a letter to your local candidates asking what they will do for people living with pain. You can also post a message on social media and use these sample posts as a starting point.

Canadian Agency for Drugs and Technology in Health (CADTH) submission Together with The Arthritis Society, we developed patient input submissions for Ixekizumab (Taltz) for ankylosing spondylitis (AS). A big thank you to those of you who completed the survey on their experiences with AS and/or with Ixekizumab.

New e-mail approach – Starting this month, we will be sending monthly e-mail updates to our community. This will make e-mails shorter and faster to read and allow us to update you on our activities more often. Let us know what you think about this new approach!

Get Involved!

Patient perspective needed on hip and knee replacements – The Canadian Institute for Health Information is looking for input from someone who has had a hip or knee replacement and a revision surgery soon afterwards. If you’re interested in contributing your perspective, learn more about the project here!

Making medication decisions for family planning & pregnancy among women with rheumatoid arthritis – A team lead by Dr. Mary da Vera at the University of British Columbia is recruiting participants for an important study to better understand medication decisions for family planning and pregnancy among women with Rheumatoid Arthritis (MOTHERS). You may qualify for the study if you are a woman between 18 – 50 years old with a diagnosis of Rheumatoid Arthritis. You can live anywhere in Canada and interviews can be done by phone. Learn more by reading the study flyer on our website (c’est aussi disponible en français)!

Survey on biosimilar medications – The Gastrointestinal Society is surveying Canadian patients from all disease areas who have been or are being treated with biologic medications. Survey responses are anonymous and results will be reviewed to shape future future programming and to inform community members, healthcare professionals, and health policy decision-makers. Consider taking the survey today!

Stay Informed!

Talk to your doctor about joint pain handout – A number of patient groups and health charities have developed a handout for people to assist those with or at risk of Osteoarthritis in having better conversations with their doctors or other health care professionals about joint pain. Read it today to get more informed and empowered in managing your health!

Canadian Early Arthritis Cohort (CATCH) videos –  CATCH is a national Canadian research initiative that follows people with new onset inflammatory arthritis to watch their disease and response to treatments. The organization has developed a number of videos of researchers, rheumatologists and patients on arthritis care and treatment. Stay informed and watch them today!

Website, Facebook, Twitter & YouTube – Our website, Facebook page, Twitter account and YouTube channel are updated regularly with new information. A number of CAPA resources are available in English, French, and Spanish. Don’t forget to follow us on Facebook, Twitter and YouTube to keep up to date on the latest arthritis and advocacy information!