It’s Arthritis Awareness Month!
September is Arthritis Awareness Month and we have started it off with this new video with Board member and fashion designer, Michael Kuluva, as he speaks with 2nd VP, Laurie Proulx. Next up, we will be hosting a Twitter chat on Saturday, September 26 at 12 p.m. EDT to discuss #ArthritisThenNow. Lene Anderson and Michael Kuluva will be co-hosting the event as we discuss how arthritis care and treatment has changed over the past few decades.
Join us in raising awareness about arthritis!
What have we been up to?
Updated TEAM modules – Are you looking for reliable information about inflammatory arthritis? Read or download our updated educational modules “Together Enhancing Arthritis Management”. You will find information about the different types of inflammatory arthritis, medications, diet and coping with arthritis (updated French version to follow). Read the resources on our website today!
CADTH submissions – Thank you to everyone who responded to our survey on the impact of RA on your life and experiences with current treatments. We used these responses to develop a patient input submission for the Canadian Agency for Drugs and Technologies in Health (CADTH) for the medication filgotinib. We also developed a submission relating to the Proposed Alignment of Drug Reimbursement Review Processes which is also available on our website.
Putting patients at the centre of COVID-19 research – CAPA Board member Emily Sirotich efforts in leading global research for people with rheumatic diseases and COVID-19 were the focus of this article in Nature. You can also listen to this webinar where she outlines the approach to designing research by and for patients with rheumatic diseases.
New Medical Advisory Committee – We work closely with many health care professionals to ensure our resources and materials are based on the latest health research evidence. To support this goal, we are pleased to announce the creation of our Medical Advisory Committee. Join us in welcoming Dr. Cheryl Barnabe, Dr. Janet Pope, and Dr. Carter Thorne!
Study on physical activity for young people with JIA – Researchers at the University of Montreal are looking for young people living with juvenile idiopathic arthritis (JIA) as well as their parents for a study focused on promoting physical activity. The team is looking to interview study participants (total of 2 hours and 15 minutes) and they will be provided with $10 gift certificate after each interview. Learn more about the study by visiting our website!
Leisure activity and chronic disease – Do you live with a chronic condition, reside in Nova Scotia and between the age of 14 and 17? A research team at Dalhousie University wants to speak with you to learn more about how your health affects leisure activities. Visit our website to learn more about the study!
PainFall survey – Do you live with chronic pain and had a fall in the last year? A research team at Queen’s University invite you to complete a survey to learn about the circumstances and consequences of falls. Consider sharing your perspective today!
Still time to participate in other research studies! Researchers are still looking for participants to guide their important studies! A team in Ottawa is looking to speak with teenagers living with JIA or their parents to provide feedback on a new app designed to help choose ways to manage pain – learn more by visiting the study website. Sick Kids researchers want to hear from children and youth aged 8 to 18 who live with chronic pain. To participate, you are asked to complete a survey that should take about 30 minutes of your time. Have your say and get involved today!
Research infographic – A research team at the University of Toronto developed an infographic and a short video describing research findings on preconception health characteristics of women with and without disabilities in Ontario – check it out today!
COVID-19 resources – We developed COVID-19 information resources for people with arthritis and a video of CAPA Board member, Michael Kuluva, with Dr. Janet Pope. We are also monitoring drug shortages closely so please complete this the short survey if you have any difficulties in accessing medications.
Website and social media updates – We are regularly updating our website, Facebook, Twitter, Instagram and YouTube channel with new information. Don’t forget to follow us on these social media channels to keep up to date on the latest arthritis and advocacy information!