OMERACT Shared Decision Making working group needs your help!

Do you have a rheumatic condition? Are you interested in shared decision making? Are you familiar with OMERACT?  Do you want to help map the future of measurement in trials of shared decision making interventions in rheumatology?

If you want to be part of this process, you can participate in a short online survey. In this survey, we will ask you to…

      1. Watch 2 short videos on OMERACT and shared decision making
      2. Answer a few questions
      3. Let us know if you wish to be involved in the next steps

If you want more information – read on, and if you don’t, please skip to the survey link. We would appreciate if you provide your feedback by Monday, March 3rd, 2020.

Description of the project:

OMERACT stands for Outcome Measures in Rheumatology and represents a community of patients, health professionals and researchers. They work together to improve the conduct of clinical trials by developing core sets of outcome domains. A core set of outcome domains is a short list of the most important outcomes (results or endpoints) that should be measured in every clinical trial.

The OMERACT working group for shared decision making has developed a draft core set of outcome domains for evaluating interventions which can facilitate shared decision making in rheumatology.

We are now seeking the support of patients, health professionals and researchers who are willing to help us review this draft core set. If you are interested in the topic of shared decision making, you can be involved in the prioritization and endorsement of the core outcome domains.

Because the methodology of OMERACT and the potential outcome domains for shared decision making interventions are not widely known, we would like to ask you to watch two 5-minute white board videos. They explain what OMERACT is and what the shared decision making process looks like (video 1), and which outcomes are important when evaluating SDM interventions (video 2).

We hope that after watching the video, you will be willing to complete a short online survey to help us improve the clarity and relevance of the draft core set of outcome domains for shared decision making interventions in rheumatology. This should take about 10 to 15 minutes.

Here is the link to the survey: https://redcap.cheori.org/surveys/?s=ECYXEMPLDW

Please feel free to forward this invitation to individuals who might be interested in participating.

Here are links to the videos (please note they are also embedded in the survey):

Video 1: What is shared decision making?

Video 2: What are the outcomes of shared decision making?

This study has been approved by the Research Ethics Board at the Children’s Hospital of Eastern Ontario (CHEO), Ottawa, Canada. Your information will be anonymized and treated confidentially. If you want to stay involved after filling in the survey, you will be able to register as an official participant of the virtual shared decision making workshop. To do so, please add your name, e-mail address and country of residence at the end of the survey. You will then be invited to participate in online discussion boards and in the final voting on the core set of outcome domains for shared decision making interventions in rheumatology. This will take place in April 2020. This second phase of the process is completely optional.

Thank you kindly for considering our survey request, and please let us know if you have any questions at: ktoupin@cheo.on.ca

With kind regards,

The OMERACT Shared Decision Making working group