CAPA at the AAC Annual Conference
CAPA President, Linda Wilhelm, shown at the AAC conference poster session with the poster presentation entitled “CAPA: Patient Pioneers in Arthritis Advocacy”.
Manulife’s DrugWatchTM Program – will it affect you?
Pharmacists – another partner in your healthcare
Last chance to take the Pregnancy & Parenting Survey – As noted in our September newsletter, CAPA has launched a survey to identify patient information needs as they relate to pregnancy and parenting. The survey is intended for individuals living with arthritis and for people in their social support network. The information obtained through this survey will be analyzed and used to develop an educational resource for pregnancy and parenting with arthritis. Share your perspective by taking the survey which closes on January 15, 2016.
Send us your input about living with or caring for a child with JIA – The Canadian Agency for Drugs in Technology in Health is reviewing Ilaris (Canakinumab) for Systemic Juvenile Arthritis (SJIA). If you are a parent of a child living with this devastating disease, we would like to hear your thoughts on the impact of the disease on your family, treatment options for your child and any experiences in taking Ilaris (Canakinumab). Please e-mail your input to Laurie Proulx at firstname.lastname@example.org by January 15, 2016.
What have we been up to?
Twitter @CAPA_Arthritis – We have created a Twitter account to complement our communications with you. Follow us on Twitter to access interesting resources and news. We post something new every day!
CAPA Board Members interviewed for The Silent Fight –Veronica Pocek developed a website which provides an in-depth look into arthritis and the burden on patients, people in their network of support and the healthcare system. CAPA Board Members were asked what are the misconceptions about the disease and what are the unique concerns that impact women. Here are their answers…
Mamas Facing Forward blog post – CAPA Board Member, Laurie Proulx, wrote about her personal journey in becoming a mother while living with Juvenile Idiopathic Arthritis in Mariah Leach’s blog From this Point Forward. Read more about Laurie’s experience here…
Drug review submissions – We have continued to provide input to the review of drugs by publicly funded drug plans. Read CAPA’s submission to the Ontario Drug Benefit Plan for Apremilast (Otezla) in the treatment of Psoriatic Arthritis.
Health Storylines App – Ever wondered if there was a health app that is tailored to people living with Ankylosing Spondylitis (AS)? Now there is with AS Health Storylines which is now available in the Apple Store and Google Play. Read moreabout it on the Canadian Spondylitis Association (CSA) website.Modern Motherhood: Unique experiences of physically disabled women – CAPA has collaborated with many researchers in carrying out their research including Lesley Tarassof. Read her article about Modern Motherhood and the experiences of physically disabled women.
Website, Facebook & Twitter- Our website, Facebook page & Twitter account are being continually updated with new information. Don’t forget to follow us on Facebook and Twitter to keep up to date on the latest arthritis and advocacy information.