A new look for a new year
We asked for your input, and we listened! Our new website is mobile-friendly, visual, and the content re-designed! We also took the opportunity to update our look and feel and we hope you love our new logo as much as we do. It’s easier to find the resources and other information you need to manage arthritis and stay up to date on health policy issues that affect you. Explore our new website now!
The year in review
As 2018 comes to a close, we are reflecting on our accomplishments and activities in 2018 and planning for what’s next. Read the message from our President, Linda Wilhelm, to learn what we have accomplished in 2018!
For many people with arthritis, their condition can seem invisible even to close family, friends, or colleagues. Learn more about how the hidden disability symbol, created by Laura Brydges, could help you in navigating the murky waters of hidden disability.
What have we been up to?
Methotrexate survey for childhood arthritis – Building on our success with our Methotrexate project, we are working with the Irish Children’s Arthritis Network (iCAN) to launch a survey to understand more about how your child takes or has taken methotrexate including any tips and tricks learned along the way. The results will inform the development of a ‘tips sheet’ about methotrexate so that others can benefit from your experiences, and get the most out of their medications. Contribute your perspective and take the survey today!
CADTH submissions – Together with The Arthritis Society, we are currently working on a patient input submission for Olumiant (Baricitinib) for Rheumatoid Arthritis. We also developed a submission related to conventional synthetic Disease Modifying Anti-Rheumatic Drugs (csDMARD’s) with The Arthritis Society, Canadian Rheumatology Association, and the Ontario Rheumatology Association.
Pregnancy and parenting tweet chat – We celebrated Arthritis Awareness month by hosting our first-ever Tweet chat on pregnancy and parenting with arthritis. There were 28 participants, and 340 tweets with almost a million Twitter impressions. Check out the conversation on Twitter using the hashtag #arthritisparent as well as the summary on our website.
Family quality of life – We worked with Dr. Catherine Backman and her team to develop this infographic which summarizes the results of her study on family quality of life for mothers living with inflammatory arthritis. All mothers, regardless of their health status, has similar priorities but mothers with inflammatory arthritis reported lower family quality of life. Social support improved family quality of life so connect with others living with arthritis, such as through the Mamas Facing Forward Facebook page.
Update on the workplace project – As you may recall, we developed a poster for the European League Against Rheumatism Congress which summarized the results of our survey relating to arthritis in the workplace. We have been developing the resources in recent months and will be sharing them with you early in 2019. Stay tuned for more information to help you at work!
@ Work: A study of millennials with rheumatic conditions – We work closely with researchers including Dr Arif Jetha who wants to understand the workplace experiences of millennials with rheumatic conditions. If you’re between the age of 18 and 35, live in Canada, and with a rheumatic condition, check out this survey now!
Share your experiences with University of Toronto students about relationships with healthcare professionals – Do you live in the Greater Toronto Area and interested in sharing your positive and negative healthcare experiences with healthcare students? If so, read this poster for more information on how to get involved. Have your say and influence future healthcare teams!
CAPA well-represented at research summit
CAPA members are actively engaged as patient partners in research including the Canadian Institutes of Health Research Strategy for Patient-Oriented Research (SPOR). Learn more about our involvement in the SPOR summit and what we learned about how other patient communities are engaging in health research.
Webinars on workplace issues for people living with arthritis – Learn about recently published research on arthritis in the workplace by listening to these webinars by Dr. Margaret Oldfield and Dr. Rebecca Purc-Stephenson. Dr. Oldfield describes what employers can do to retain employees living with Fibromyalgia and Dr. Purc-Stephenson outlines the work experiences and adaptations made by employees with arthritis.
Patient Information Service – Did you know that the College of Physicians and Surgeons of Ontario has a resource for patients? Patient Compass is a quarterly newsletter for the general public which keeps you up to date about the latest health issues and how you can participate in consultations.
Website, Facebook, Twitter & YouTube – Our website, Facebook page, Twitter account and YouTube channel are updated regularly with new information. A number of CAPA resources are available in English, French, and Spanish. Don’t forget to follow us on Facebook, Twitter and YouTube to keep up to date on the latest arthritis and advocacy information!