CAPA news
CTO Submission on Health Canada’s Clinical Trials Regulatory Modernization Initiative
CAPA along with 20 other health charities, patient organizations, and research networks, and led by Clinical Trials Ontario, submitted this input to Health Canada on its consultation paper related to its Regulatory Modernization Initiative. Health Canada is proposing to modernize the regulatory framework for clinical trials related to human drugs,
Better Understanding Biosimilar Medications
CAPA has developed the video about biosimilars that may help you understand more about biologics and biosimilars and to have a conversation with your rheumatologist or other healthcare providers about switching. Watch it now.
Pregnancy and Parenting with Arthritis: A Resource for Patients by Patients
Learn about CAPA's "Pregnancy and Parenting with Arthritis: A Resource for Patients by Patients" resources, co-developed with Mamas Facing Forward, CAPA Medical Advisory and leading health care professionals and researchers in the field of reproductive issues.
Virtual Care Appointment Patient Planner
Use this Virtual care planner and Guide developed by the Save Your Skin Foundation to help patients to optimize their virtual care appointments.
GLA:D Canada Learning Network Sessions
Register for the GLA:D Canada Learning Network sessions for people who would like more information about hip and knee osteoarthritis. Registration is open for 8 consecutive sessions in June, July, August and September, that are 45-min long and are hosted virtually using Zoom.
CAPA is Celebrating International Clinical Trials Day!
May 20th is the International Clinical Trials Day! CAPA Vice-President, Laurie Proulx, spoke at this year’s Clinical Trials Ontario conference about patient preferences in rheumatology clinical trials.
Arthritis Society Online Consumer Panels
The Arthritis Society is inviting individuals who are living with arthritis to participate as volunteer members of their Online Consumer Panels. You will have the opportunity to share your knowledge, experience and feedback to help develop educational resources and activities to improve the quality of life of people impacted by arthritis.
Patients with Autoimmune Conditions and/or on Immune Suppressing Medications Invited to Participate in Short Survey
You are invited to participate in the research study, entitled COVID-19 vaccination in patients with autoimmune disease: A Discrete Choice Experiment. Please answer the survey questions to help us better understand your preferences around having the COVID-19 vaccine.
CAPA newsletters
Newsletter – June 2021
This month, CAPA team has been involved in the development of the video on a biosimilar medication. launching the new parenting resources, speaking at the webinar on an action plan for pain in Canada and many more!
Newsletter – May 2021
This month CAPA team has been busy advocating for the second dose of the COVID-19 vaccine for people with autoimmune rheumatic conditions, updating and launching our pregnancy resources and being at the forefront of "A call for action to #PrioritizePain" campaign. Learn more by reading our newsletter!
Newsletter – April 2021
In this newsletter edition, we invite you to provide input to the three very important surveys on the sexual and reproductive health in arthritis care, the COVID-19 vaccine access and the COVID-19 Global Rheumatology Alliance. Register and join us for the Shared decision making webinar on April 25th to be hosted by Dr. Claire Barber, Dr. Glen Hazlewood and Dr. Karine Toupin April.
Newsletter – March 2021
This month we continue informing you about the rollout of the COVID-19 vaccine which is currently underway and what this means to many people living with rheumatic diseases. Read more.
Newsletter – February 2021
This month CAPA Board members were involved in the guideline panel discussions on the new COVID-19 vaccination recommendation from the Canadian Rheumatology Association, attended and participated in the annual 2021 Canadian Arthritis Research Conference, contributed as panel moderators and presenters, and many more.
Newsletter – January 2021
Welcome to 2021! "The 2020 was a year like no other where our homes have become the focus of our lives, our workplace, a classroom, and our sanctuarys", said the CAPA President Linda Wilhelm. January 2021 had been a very busy start of the new year for CAPA team, as we have been engaged in the development of the COVID-19 vaccine decision aid, writing a letter to NACI and public health officials across Canada, providing patient input to CADTH submissions for new drugs and many more.
Newsletter – December 2020
2020 has been a challenging year for so many of us! As CAPA team, we have tried our best to support the arthritis community throughout the pandemic by addressing drug shortages, developing evidence-based resources, hosting a virtual fashion show and many more. To end the year on a lighter note, the CAPA Board of Directors wish you the best holiday season and best of luck in the year ahead!
Newsletter – November 2020
This month CAPA has introduced its #ArthritisThenNow infographic designed to describe how arthritis treatments and life has changed for people living with inflammatory arthritis over the last 20 years! Read more about many other activities and projects we have been involved into!
When you live with arthritis,
information is your most important tool.
The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.
We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.