CAPA news
Invitation to Complete the Global Rheumatology Alliance COVID-19 Vax Survey
We invite you to complete the Global Rheumatology Alliance COVID-19 Vax Survey and help researchers in learning how people with rheumatic disease make decisions regarding the vaccines in light of their rheumatic disease.
CAPA’s Feedback to VCAG Recommendations on Exceptions to Extended Dose Intervals for COVID-19 vaccines
CAPA wrote this letter due to concerns about the time delay that the National Advisory Council on Immunization (NACI) has deemed acceptable between first and second doses of vaccinations for people living with forms of inflammatory arthritis and who are on immunosuppressants.
Meet CAPA Board member – Emily Sirotich
We continue introducing our new Board members and invite you to listen to Emily Sirotich’s story. Emily is a patient partner and a current PhD student in Health Research Methodology at McMaster University. “The COVID pandemic really pushed the real impact that patients can have not only as participants in research but people who lead [&
New Arthritis+Patient App to Test
Please join us to try a new educational companion, a free, user-friendly tool Arthritis+Patient App that is designed to provide patient education and self-management. Learn more about its functionality and use here.
CAPA Webinar on Shared Decision Making on April 25th at 1 pm EDT
Join CAPA community for a webinar on Shared Decision Making on Sunday, April 25th at 1:00 pm EDT with Drs. Claire Barber, Glen Hazlewood and Karine Topin April to learn how it can help you build a better relationship with your health care provider.
Arthritis, COVID-19 and vaccines
CAPA's Medical Advisory Committee is sharing their perspective on Arthritis, COVID-19 and available vaccines. Listen to the full video conversation with Drs. Janet Pope, Carter Thorne and Cheryl Barnabe.
Arthritis and COVID-19
CAPA is having a conversation on Arthritis and COVID-19 pandemic with its Medical Advisory Committee, Drs. Janet Pope, Carter Thorne and Cheryl Barnabe. Listen to a full video chat.
Patient Engagement in Research: The Why and How
This video presents Dr. Dawn Richards, CAPA's 1st Vice President, sharing her own and other people experiences in patient and public engagement as partners on research teams.
CAPA newsletters
Newsletter – April 2021
In this newsletter edition, we invite you to provide input to the three very important surveys on the sexual and reproductive health in arthritis care, the COVID-19 vaccine access and the COVID-19 Global Rheumatology Alliance. Register and join us for the Shared decision making webinar on April 25th to be hosted by Dr. Claire Barber, Dr. Glen Hazlewood and Dr. Karine Toupin April.
Newsletter – March 2021
This month we continue informing you about the rollout of the COVID-19 vaccine which is currently underway and what this means to many people living with rheumatic diseases. Read more.
Newsletter – February 2021
This month CAPA Board members were involved in the guideline panel discussions on the new COVID-19 vaccination recommendation from the Canadian Rheumatology Association, attended and participated in the annual 2021 Canadian Arthritis Research Conference, contributed as panel moderators and presenters, and many more.
Newsletter – January 2021
Welcome to 2021! "The 2020 was a year like no other where our homes have become the focus of our lives, our workplace, a classroom, and our sanctuarys", said the CAPA President Linda Wilhelm. January 2021 had been a very busy start of the new year for CAPA team, as we have been engaged in the development of the COVID-19 vaccine decision aid, writing a letter to NACI and public health officials across Canada, providing patient input to CADTH submissions for new drugs and many more.
Newsletter – December 2020
2020 has been a challenging year for so many of us! As CAPA team, we have tried our best to support the arthritis community throughout the pandemic by addressing drug shortages, developing evidence-based resources, hosting a virtual fashion show and many more. To end the year on a lighter note, the CAPA Board of Directors wish you the best holiday season and best of luck in the year ahead!
Newsletter – November 2020
This month CAPA has introduced its #ArthritisThenNow infographic designed to describe how arthritis treatments and life has changed for people living with inflammatory arthritis over the last 20 years! Read more about many other activities and projects we have been involved into!
Newsletter – October 2020
This month CAPA has teamed up with CreakyJoints in the United States and Australia to bring our readers special content devoted to the World Arthritis Day for them to learn what it’s like to live with arthritis during the pandemic from a global perspective.
Newsletter – September 2020
In this newsletter edition, we are celebrating the September Arthritis Awareness Month and presenting our new video with Board member and fashion designer, Michael Kuluva, as he speaks with 2nd VP, Laurie Proulx and...much more in this edition. Join us in raising awareness about arthritis!
When you live with arthritis,
information is your most important tool.
The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.
We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.