CAPA news
Patient Engagement in Research: The Why and How
This video presents Dr. Dawn Richards, CAPA's 1st Vice President, sharing her own and other people experiences in patient and public engagement as partners on research teams.
CRA Recommendation for Covid-19 Vaccination in Persons with Autoimmune Rheumatic Disease
The Canadian Rheumatology Association (CRA) has developed a formal GRADE recommendation for Covid-19 vaccination in persons with autoimmune rheumatic disease. The recommendation focuses on the use of the 2 currently approved COVID vaccines: BNT 162b2 (Pfizer-BioNTech) and mRNA-1273 (Moderna). Click here to read the CRA Guideline.
Survey Participants Needed for Study on Virtual Primary Care
A research team based out of the University of Toronto and the Bruyere Research Institute is learning about people’s experience with virtual primary care in Ontario. Researchers are seeking participants for a survey about their experiences with telephone or video appointments in primary care.
Solutions For Kids In Pain (SKIP) Webinar on February 23rd, 2021
Solutions for Kids in Pain (SKIP) is a knowledge mobilization network based at Dalhousie University and co-directed by Children’s Healthcare Canada, and funded by the Networks of Centres of Excellence (NCE). Join the webinar on “Solutions for Kids in Pain (SKIP): Patients-Included Approach to Knowledge Mobilization” presented by t
A Meta-Analysis of the Study on Health of Newborns and Infants Born to Women with Disabilities
The newborn and infant periods are important for determining long-term health and development. The Disability and Pregnancy Study (a research program) presents the new report that summarizes existing literature on the health outcomes of newborns and infants born to women with disabilities. These findings also suggest the need to consider what servi
Decision Aid for the Covid-19 Vaccine
Clinical trials show that COVID-19 vaccines are safe and effective. Should I get vaccinated? CRA, with input from CAPA, designed a Decision Aid tool to help those living with an autoimmune disease to decide with their healthcare provider what best would work for them.
Welcome to 2021: A Message from the CAPA President
"2020 was a year like no other where home has become the focus of our lives, our workplace, a classroom, and our sanctuary. As the vaccines roll out with the hope that it will return us to much missed activities, CAPA is hard at work clarifying the mixed messaging patients living with rheumatic disease are receiving." Read a message from our Presid
CAPA and the Arthritis Society CADTH Submission on Upadacitinib for Psoriatic Arthritis
In preparation for the CADTH submission for a manufacturer’s drug Upadacitinib for the treatment of psoriatic arthritis (PsA), the Canadian Arthritis Patient Alliance (CAPA) and the Arthritis Society (TAS) developed a survey to hear directly from people living with psoriatic arthritis about their experiences with these conditions and any experi
CAPA newsletters
Newsletter – February 2021
This month CAPA Board members were involved in the guideline panel discussions on the new COVID-19 vaccination recommendation from the Canadian Rheumatology Association, attended and participated in the annual 2021 Canadian Arthritis Research Conference, contributed as panel moderators and presenters, and many more.
Newsletter – January 2021
Welcome to 2021! "The 2020 was a year like no other where our homes have become the focus of our lives, our workplace, a classroom, and our sanctuarys", said the CAPA President Linda Wilhelm. January 2021 had been a very busy start of the new year for CAPA team, as we have been engaged in the development of the COVID-19 vaccine decision aid, writing a letter to NACI and public health officials across Canada, providing patient input to CADTH submissions for new drugs and many more.
Newsletter – December 2020
2020 has been a challenging year for so many of us! As CAPA team, we have tried our best to support the arthritis community throughout the pandemic by addressing drug shortages, developing evidence-based resources, hosting a virtual fashion show and many more. To end the year on a lighter note, the CAPA Board of Directors wish you the best holiday season and best of luck in the year ahead!
Newsletter – November 2020
This month CAPA has introduced its #ArthritisThenNow infographic designed to describe how arthritis treatments and life has changed for people living with inflammatory arthritis over the last 20 years! Read more about many other activities and projects we have been involved into!
Newsletter – October 2020
This month CAPA has teamed up with CreakyJoints in the United States and Australia to bring our readers special content devoted to the World Arthritis Day for them to learn what it’s like to live with arthritis during the pandemic from a global perspective.
Newsletter – September 2020
In this newsletter edition, we are celebrating the September Arthritis Awareness Month and presenting our new video with Board member and fashion designer, Michael Kuluva, as he speaks with 2nd VP, Laurie Proulx and...much more in this edition. Join us in raising awareness about arthritis!
Newsletter – Summer 2020
This newsletter edition highlights CAPA's activities during the summer season. We kept on contributing patient perspectives to research, health policy and education. Read our summer newsletter to find out more.
Newsletter – June 2020
This month CAPA team have been actively participated in various initiatives while pandemic is moving into a new stage. CAPA's #ArthritisAtWork social media campaign video presentation was the highlight of the international EULAR e-Congress held on June 6, 2020. Read more about what we have been up to!
When you live with arthritis,
information is your most important tool.
The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.
We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.