CAPA news
Now launched! Baring it all: Final Report on Reproductive and Sexual Health in Women+ with IA, PsA and Rheumatic Diseases
Join us for the launch of the first-ever report of its kind in Canada that covers various topics important to women+ with these conditions including contraception, sexual health, family planning considerations, parenting, and menopause.
Growing Up with Juvenile Arthritis-A Live Event!
Participate in the live event and learn what it means to be Growing Up with Juvenile Arthritis!
Join the Virtual Creaky Joints Fashion Show and Participate in #CreakyChats!
We are pleased to co-host a #CreakyChats Twitter chat and 2022 Tumbler and Tipsy® by Michael Kuluva Fashion Show! Let's celebrate #ArthritisAwarenessMonth together!
Participants Needed for Research on Chronic Pain
If you are interested to participate in the research study on how to manage your chronic pain, please learn here.
CTO Submission on Health Canada’s Clinical Trials Regulatory Modernization Initiative
CAPA along with 20 other health charities, patient organizations, and research networks, and led by Clinical Trials Ontario, submitted this input to Health Canada on its consultation paper related to its Regulatory Modernization Initiative. Health Canada is proposing to modernize the regulatory framework for clinical trials related to human drugs,
Better Understanding Biosimilar Medications
CAPA has developed the video about biosimilars that may help you understand more about biologics and biosimilars and to have a conversation with your rheumatologist or other healthcare providers about switching. Watch it now.
Pregnancy and Parenting with Arthritis: A Resource for Patients by Patients
Learn about CAPA's "Pregnancy and Parenting with Arthritis: A Resource for Patients by Patients" resources, co-developed with Mamas Facing Forward, CAPA Medical Advisory and leading health care professionals and researchers in the field of reproductive issues.
Virtual Care Appointment Patient Planner
Use this Virtual care planner and Guide developed by the Save Your Skin Foundation to help patients to optimize their virtual care appointments.
CAPA newsletters
Newsletter – September 2021
Over the summer, CAPA had participated in the development of a CRA virtual care statement, voiced the patient perspective on proposed drug pricing changes on patients and did an extensive survey on sexual and reproductive health in collaboration with other patient groups. We had planned lots of fun activities for September, the Arthritis Awareness month!
Newsletter – June 2021
This month, CAPA team has been involved in the development of the video on a biosimilar medication. launching the new parenting resources, speaking at the webinar on an action plan for pain in Canada and many more!
Newsletter – May 2021
This month CAPA team has been busy advocating for the second dose of the COVID-19 vaccine for people with autoimmune rheumatic conditions, updating and launching our pregnancy resources and being at the forefront of "A call for action to #PrioritizePain" campaign. Learn more by reading our newsletter!
Newsletter – April 2021
In this newsletter edition, we invite you to provide input to the three very important surveys on the sexual and reproductive health in arthritis care, the COVID-19 vaccine access and the COVID-19 Global Rheumatology Alliance. Register and join us for the Shared decision making webinar on April 25th to be hosted by Dr. Claire Barber, Dr. Glen Hazlewood and Dr. Karine Toupin April.
Newsletter – March 2021
This month we continue informing you about the rollout of the COVID-19 vaccine which is currently underway and what this means to many people living with rheumatic diseases. Read more.
Newsletter – February 2021
This month CAPA Board members were involved in the guideline panel discussions on the new COVID-19 vaccination recommendation from the Canadian Rheumatology Association, attended and participated in the annual 2021 Canadian Arthritis Research Conference, contributed as panel moderators and presenters, and many more.
Newsletter – January 2021
Welcome to 2021! "The 2020 was a year like no other where our homes have become the focus of our lives, our workplace, a classroom, and our sanctuarys", said the CAPA President Linda Wilhelm. January 2021 had been a very busy start of the new year for CAPA team, as we have been engaged in the development of the COVID-19 vaccine decision aid, writing a letter to NACI and public health officials across Canada, providing patient input to CADTH submissions for new drugs and many more.
Newsletter – December 2020
2020 has been a challenging year for so many of us! As CAPA team, we have tried our best to support the arthritis community throughout the pandemic by addressing drug shortages, developing evidence-based resources, hosting a virtual fashion show and many more. To end the year on a lighter note, the CAPA Board of Directors wish you the best holiday season and best of luck in the year ahead!
When you live with arthritis,
information is your most important tool.
The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.
We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.