Many people affected by arthritis contribute to shaping the Arthritis Society’s research programs. We have been fortunate to have several enthusiastic and dedicated consumers actively involved as expert reviewers for Arthritis Society research grants and awards. Their insights, experiences, and knowledge of living with arthritis have been integra
By: Lene Andersen Ontario has a new opioid strategy and it’s missing the voices of Ontarians who live with chronic pain. One in five Canadians have chronic pain. The cost of chronic pain is more than the combined cost of cancer, HIV and heart disease. Direct healthcare for those who live with pain exceed 6 […]
By: Laurie Proulx I write this from a place of sadness and not joy or pride unfortunately. A dear friend and patient advocate, Louise Bergeron, died suddenly in mid-August during an unfortunate and tragic car accident. She was 57 years old but even though her time was cut short, she and her family can t […]
Towards a Better Understanding of the Use of Complementary and Alternative Medicine Among Youth with JIA
By: Karine Toupin-April, PhD Various studies have shown that the general population, and particularly patients with chronic conditions, use all sorts of health approaches, such as complementary and alternative medicine (CAM). The use of these approaches is also very common among children with chronic conditions, such as juvenile idiopathic arthriti
By: Janet Gunderson In 2014, Choosing Wisely Canada (CWC) was started in partnership with the Canadian Medical Association inspired by a similar initiative launched in the United Stated in 2012. The Choosing Wisely campaign aims to help physicians and patients engage in a dialogue about unnecessary tests, treatments, medications and procedures. T
New study shows that life and career stage do matter when thinking about the impact of arthritis on employment
By Julie Bowring, Research Associate, Institute for Work & Health Arthritis affects 4.3 million Canadians, 60% of whom are under the age of 65. Not surprisingly, the health condition has a big impact on the ability of people with arthritis to find work and keep working throughout their lives. Yet, we know little about how […]
By: Annette McKinnon I teamed up with Canadian Spondylitis Association President, Michael Mallinson, for a visit to our Member of Parliament Nathaniel Erskine-Smith. We are in the same riding and are both acquainted with him. We did not want to wait until too late in the summer because he and his wife are expecting a […]
In this newsletter edition, we invite you to provide input to the three very important surveys on the sexual and reproductive health in arthritis care, the COVID-19 vaccine access and the COVID-19 Global Rheumatology Alliance. Register and join us for the Shared decision making webinar on April 25th to be hosted by Dr. Claire Barber, Dr. Glen Hazlewood and Dr. Karine Toupin April.
This month we continue informing you about the rollout of the COVID-19 vaccine which is currently underway and what this means to many people living with rheumatic diseases. Read more.
This month CAPA Board members were involved in the guideline panel discussions on the new COVID-19 vaccination recommendation from the Canadian Rheumatology Association, attended and participated in the annual 2021 Canadian Arthritis Research Conference, contributed as panel moderators and presenters, and many more.
Welcome to 2021! "The 2020 was a year like no other where our homes have become the focus of our lives, our workplace, a classroom, and our sanctuarys", said the CAPA President Linda Wilhelm. January 2021 had been a very busy start of the new year for CAPA team, as we have been engaged in the development of the COVID-19 vaccine decision aid, writing a letter to NACI and public health officials across Canada, providing patient input to CADTH submissions for new drugs and many more.
2020 has been a challenging year for so many of us! As CAPA team, we have tried our best to support the arthritis community throughout the pandemic by addressing drug shortages, developing evidence-based resources, hosting a virtual fashion show and many more. To end the year on a lighter note, the CAPA Board of Directors wish you the best holiday season and best of luck in the year ahead!
This month CAPA has introduced its #ArthritisThenNow infographic designed to describe how arthritis treatments and life has changed for people living with inflammatory arthritis over the last 20 years! Read more about many other activities and projects we have been involved into!
This month CAPA has teamed up with CreakyJoints in the United States and Australia to bring our readers special content devoted to the World Arthritis Day for them to learn what it’s like to live with arthritis during the pandemic from a global perspective.
In this newsletter edition, we are celebrating the September Arthritis Awareness Month and presenting our new video with Board member and fashion designer, Michael Kuluva, as he speaks with 2nd VP, Laurie Proulx and...much more in this edition. Join us in raising awareness about arthritis!
When you live with arthritis,
information is your most important tool.
The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.
We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.