by: Linda Wilhelm As October 2014 was winding down, members of the Canadian Arthritis community, including the entire Board of The Canadian Arthritis Patient Alliance, gathered in Toronto for the 2nd Annual Arthritis Alliance of Canada (AAC) Conference and Research Symposium. The three day conference was jam packed, beginning on Thursday, October 3
On October 18, 2014, I had the pleasure of attending the 1st Forum on Arthritis organized by Québec division of The Arthritis Society. The event gathered 940 participants, speakers, vendors and partners. In addition to sessions for the general public, continuing education sessions were offered to health professionals. Topics discussed were chosen
by: Laurie Proulx Like so many of you, I’ve learned to deal with this disease. I was diagnosed with Juvenile Idiopathic Arthritis at the age of 14. Hardly a day goes by where I don’t feel pain in some part of my body. But I’ve learned that there are always a few more surprises this […]
by Marie-Eve Veilleux Montreal is one of the least accessible cities in Canada. Among the challenges faced by disabled people is that the metro system only has 7 accessible stations out of 68, all located on one single metro line (see map of the accessible metro). At the current rate, the Montreal Metro would be fully accessible by 2090. [&hell
By Laurie Proulx People living with arthritis have to take medications (often many!) to control their disease. I’ve had to take medications for the last 20 years in order to control the Juvenile Idiopathic Arthritis (JIA) that struck me when I was 14 years old. I have usually taken for granted that these medications go […]
I don’t remember a lot of the battles my mom had to fight before I could take over to fight my own, but I know one thing: she always made sure I would grow up in a regular environment and that’s probably the greatest gift she ever gave me. I have juvenile arthritis, so I […]
Over the summer, CAPA had participated in the development of a CRA virtual care statement, voiced the patient perspective on proposed drug pricing changes on patients and did an extensive survey on sexual and reproductive health in collaboration with other patient groups. We had planned lots of fun activities for September, the Arthritis Awareness month!
This month, CAPA team has been involved in the development of the video on a biosimilar medication. launching the new parenting resources, speaking at the webinar on an action plan for pain in Canada and many more!
This month CAPA team has been busy advocating for the second dose of the COVID-19 vaccine for people with autoimmune rheumatic conditions, updating and launching our pregnancy resources and being at the forefront of "A call for action to #PrioritizePain" campaign. Learn more by reading our newsletter!
In this newsletter edition, we invite you to provide input to the three very important surveys on the sexual and reproductive health in arthritis care, the COVID-19 vaccine access and the COVID-19 Global Rheumatology Alliance. Register and join us for the Shared decision making webinar on April 25th to be hosted by Dr. Claire Barber, Dr. Glen Hazlewood and Dr. Karine Toupin April.
This month we continue informing you about the rollout of the COVID-19 vaccine which is currently underway and what this means to many people living with rheumatic diseases. Read more.
This month CAPA Board members were involved in the guideline panel discussions on the new COVID-19 vaccination recommendation from the Canadian Rheumatology Association, attended and participated in the annual 2021 Canadian Arthritis Research Conference, contributed as panel moderators and presenters, and many more.
Welcome to 2021! "The 2020 was a year like no other where our homes have become the focus of our lives, our workplace, a classroom, and our sanctuarys", said the CAPA President Linda Wilhelm. January 2021 had been a very busy start of the new year for CAPA team, as we have been engaged in the development of the COVID-19 vaccine decision aid, writing a letter to NACI and public health officials across Canada, providing patient input to CADTH submissions for new drugs and many more.
2020 has been a challenging year for so many of us! As CAPA team, we have tried our best to support the arthritis community throughout the pandemic by addressing drug shortages, developing evidence-based resources, hosting a virtual fashion show and many more. To end the year on a lighter note, the CAPA Board of Directors wish you the best holiday season and best of luck in the year ahead!
When you live with arthritis,
information is your most important tool.
The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.
We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.