CAPA, Arthritis Society and Cassie & Friends CADTH Submission on Anakinra (Kineret) for Still’s and SJIA
In preparation for the CADTH submission for a manufacturer’s drug Anakinra (Kineret) for the treatment of Still’s disease in children and adults, the Canadian Arthritis Patient Alliance in collaboration with the Arthritis Society and Cassie and Friends developed a survey to hear directly from people living with Still’s disease and SJIA ab
CAPA Letter on NACI’s Recommendations on Approved COVID-19 Vaccines for People with Autoimmune Disease
The National Advisory Committee on Immunization’s (NACI’s) issued recommendations on the currently approved COVID-19 vaccines. As individuals who live with autoimmune disease and who are on immunosuppressant therapies, we ask that Committee to consider our perspectives and preferences in NACI's continued updates to the recommendations and as
Are you wondering what is health technology assessment? Who is responsible for health technology assessment and how do health technology assessment organizations make their decisions? Learn more about it here.
Do you or a family member have Still’s disease or Systemic Idiopathic Juvenile Arthritis (SJIA)? If so, your valuable input is needed to the Common Drug Review (CDR) on the manufacturer’s submission for Anakinra (Kineret) for the treatment of Still’s disease and SJIA in adults and pediatric patients aged 8 months and older!
The Common Drug Review (CDR) is welcoming patients to provide input to patient organizations on the manufacturer’s submission for upadacitinib for the treatment of psoriatic arthritis (PsA). Please be one of the first respondents to this survey available in English and French!
“I like living in a solution instead of a problem”. We invite you to listen to CAPA's one of the new Board members, Therese Lane's compelling story of living with arthritis and what made her become the patient advocate!
Learn about the Canadian Pain Taskforce's latest work, what they heard from Canadians during their consultations, about the expected impact of their latest report to government and next steps for the Taskforce’s three-year mandate.
We know there can be a lot of questions about the flu vaccine when you live with inflammatory arthritis. As people who live with arthritis, we put together some questions that our Medical Advisory Committee has answered for you here.
In this newsletter edition, we invite you to provide input to the three very important surveys on the sexual and reproductive health in arthritis care, the COVID-19 vaccine access and the COVID-19 Global Rheumatology Alliance. Register and join us for the Shared decision making webinar on April 25th to be hosted by Dr. Claire Barber, Dr. Glen Hazlewood and Dr. Karine Toupin April.
This month we continue informing you about the rollout of the COVID-19 vaccine which is currently underway and what this means to many people living with rheumatic diseases. Read more.
This month CAPA Board members were involved in the guideline panel discussions on the new COVID-19 vaccination recommendation from the Canadian Rheumatology Association, attended and participated in the annual 2021 Canadian Arthritis Research Conference, contributed as panel moderators and presenters, and many more.
Welcome to 2021! "The 2020 was a year like no other where our homes have become the focus of our lives, our workplace, a classroom, and our sanctuarys", said the CAPA President Linda Wilhelm. January 2021 had been a very busy start of the new year for CAPA team, as we have been engaged in the development of the COVID-19 vaccine decision aid, writing a letter to NACI and public health officials across Canada, providing patient input to CADTH submissions for new drugs and many more.
2020 has been a challenging year for so many of us! As CAPA team, we have tried our best to support the arthritis community throughout the pandemic by addressing drug shortages, developing evidence-based resources, hosting a virtual fashion show and many more. To end the year on a lighter note, the CAPA Board of Directors wish you the best holiday season and best of luck in the year ahead!
This month CAPA has introduced its #ArthritisThenNow infographic designed to describe how arthritis treatments and life has changed for people living with inflammatory arthritis over the last 20 years! Read more about many other activities and projects we have been involved into!
This month CAPA has teamed up with CreakyJoints in the United States and Australia to bring our readers special content devoted to the World Arthritis Day for them to learn what it’s like to live with arthritis during the pandemic from a global perspective.
In this newsletter edition, we are celebrating the September Arthritis Awareness Month and presenting our new video with Board member and fashion designer, Michael Kuluva, as he speaks with 2nd VP, Laurie Proulx and...much more in this edition. Join us in raising awareness about arthritis!
When you live with arthritis,
information is your most important tool.
The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.
We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.