September is Arthritis Awareness Month
It’s that time of the year again- Arthritis Awareness Month! This is your chance to spread the word about arthritis and how it affects you and your family. We continue to educate people and policymakers on the challenges and seriousness of living with arthritis. Read this story to hear from a CAPA Board Member about the importance of early diagnosis and treatment and how we work hard to raise arthritis awareness.
Meet Dr. Karine Toupin-April: Making a difference for kids with arthritis
At this year’s Canadian Rheumatology Association (CRA) meeting, we sat down with Canadian rheumatology leaders who are making an impact. Read the next article in the series to learn about Dr. Karine Toupin-April, a researcher at the Children’s Hospital of Eastern Ontario Research Institute. Learn about her contributions to the field of rheumatology and how she’s supporting youth and families with Juvenile Idiopathic Arthritis!
What have we been up to?
Canadian Agency for Drugs and Technology in Health (CADTH) Submissions – Together with The Arthritis Society, we developed patient input submissions for Benlysta (belimumab) for Systemic Lupus Erythematosus and Upadacitinib for Rheumatoid Arthritis. We are also developing a submission for ixekizumab (Taltz) for the treatment of ankylosing spondylitis (AS) and welcome input from people living with AS. The survey will take about 15 minutes to complete and is open until September 9 – have your say today!
Save the Date for our next Twitter Chat! World Arthritis Day (WAD) is October 12 and we will be celebrating by hosting our next Twitter Chat. WAD is an international day to raise awareness about arthritis and is organized by our arthritis community in Europe (EULAR). The topic of the Twitter Chat will be arthritis at work – we hope to have an open discussion on the impact of arthritis in the workplace and what we can do about it.
Health Canada consultation on promotional / non-promotional messages and activities – We were busy in recent weeks developing a submission for Health Canada for their public consultation on the distinctions between promotional and non-promotional messages and activities. The guidance document has not been updated since 2005 and we felt it was an excellent opportunity to provide input from a patient perspective. Read our submission to learn more!
Workplace resources now available in French! We are pleased to share the French version of our workplace resources. The workplace resources were informed by a survey of people with arthritis where we explored workplace experiences, challenges, and solutions. Access the resources by visiting our website today!
Pregnancy study for people with disabilities in Ontario – Researchers at the University of Toronto are doing a study to learn about the experiences and needs of people with disabilities when they are pregnant and having a baby. You need to live in Ontario, be 18 years of age or older, and live with a physical, sensory, or intellectual disability. Learn more about the study by visiting our website!
Psoriatic Arthritis Awareness Day Twitter Chat – We are pleased to be collaborating with arthritis patient groups and health charities to celebrate Psoriatic Arthritis Awareness Day. A Twitter chat will be held on October 17 from 7 – 8 p.m. EST. We would love to hear if you have any questions you would like to discuss – e-mail us to provide your thoughts on what is important to you!
Qualman-Davies Community Leadership Award – Do you know a person with arthritis who has, or is, providing leadership in the community and deserves recognition for their valuable volunteer work? We encourage you to help us celebrate their contributions by nominating them for the Qualman-Davies Arthritis Consumer Community Leadership Award. Learn more by visiting the Joint Health website today!
New Health Canada Factsheet on Biosimilars – There are a number of biosimilar medications available to treat people with arthritis in Canada. We developed a video to support people with arthritis to understand the differences between biosimilars and biologic medication. Health Canada has recently updated its fact sheet on biosimilars – stay informed and read it today!
New Biosimilars Policy in British Columbia – In May, the government of British Columbia announced a new biosimilars policy that will affect people in the province. The initiative will switch patients who use biologic medicines to biosimilar medicines by November 25, 2019. To learn more, visit the B.C. government’s website where you will find a description of the change, and frequently asked questions page designed for patients. We encourage you to speak with your doctor about how the change will affect you.
New workplace tools from The Arthritis Society – The Arthritis Society has developed workplace tools to help people with arthritis and their employers. Check out the information on workplace accommodations, employment standards as well as interactive podcasts and videos. CAPA’s very own, Annette McKinnon is featured in this podcast!
Website, Facebook, Twitter & YouTube – Our website, Facebook page, Twitter account and YouTube channel are updated regularly with new information. A number of CAPA resources are available in English, French, Spanish, and Chinese. Don’t forget to follow us on Facebook, Twitter and YouTube to keep up to date on the latest arthritis and advocacy information!