Last chance to take our survey!
We know that addressing sexual and reproductive health in arthritis care is poorly understand and acknowledged. To better understand patient needs, we have developed a survey on sexual and reproductive health with other arthritis and psoriasis patient organizations. Consider contributing your perspective by completing the survey by tomorrow (April 18)!
What have we been up to?
Register for our next webinar! Shared decision making is where patients make decisions with their health care providers that consider values, preferences and the latest research evidence. Join us at our webinar to hear how shared decision making is being made a reality with rheumatologists Drs. Claire Barber and Glen Hazelwood and health researcher and occupational therapist, Dr. Karine Toupin April. Register today to learn more!
Osteoarthritis Hub – We worked closely with the Arthritis Society to create this Osteoarthritis hub, a comprehensive source of information about the most common form of arthritis. The hub includes information about symptoms and diagnosis, self-management and treatment. Learn more by visiting the Arthritis Society website today!
Podcast on navigating the pandemic – Relax and sit back to listen to a podcast with CAPA Board member, Laurie Proulx, as she speaks about her experiences navigating the pandemic as a person living with Juvenile Idiopathic Arthritis / Rheumatoid Arthritis. She speaks about her personal challenges at work and at home as a Mom as well as the advocacy she did for people living with rheumatic diseases during the pandemic.
Meet CAPA Team – We continue introducing our new Board members and invite you to listen to Emily Sirotich’s story.
Survey on COVID-19 vaccine access – With COVID-19 vaccination underway, the Canadian Rheumatology Association wants to be informed of any vaccine access issues for people living with rheumatic conditions. If you experience any issues in obtaining vaccine access (e.g. additional paperwork), consider taking this survey!
Arthritis+ Patient App – A new mobile phone app called the Arthritis+ Patient App is now available on the iOS and android App Store. The app was developed by Dr. Manisha Mulgund, a community rheumatologist in Hamilton and it provides education about inflammatory arthritis, a symptom journal and self-management tools. Consider downloading it today!
COVID-19 Global Rheumatology Alliance (GRA) survey – The GRA is interested in learning how people with rheumatic disease make decisions regarding the vaccines in light of their rheumatic disease. There are questions about whether or not you developed COVID-19, as well as your opinions regarding the COVID-19 vaccines, and guidance on the vaccine that you may have received from your doctors. Consider completing the survey today!
Actemra IV supply – The Canadian Rheumatology Association issued a statement to their members about the supply of Actemra IV given its use in people with COVID-19. The CRA recommends that, where appropriate, rheumatologists consider switching or starting patients on the subcutaneous ACTEMRA SC formulation.
Health Canada review of Xeljanz (tofacitinib) – Earlier this month, Health Canada informed the public that they have initiated a review of Xeljanz (tofacitinib). They are investigating the risk of serious heart-related issues and cancer with the use of the medication. Learn more by visiting the Health Canada website.
COVID-19 and the forgotten disability – It’s not too late to read this article by Lene Andersen, Catherine Stratton and CAPA Board members Laurie Proulx and Emily Sirotich. The article was published in Healthy Debate and highlights the many ways that disabled people were left behind during the pandemic. Get informed and read the article today!
Website and social media updates – We are regularly updating our website, Facebook, Twitter, Instagram and YouTube channel with new information. Don’t forget to follow us on these social media channels to keep up to date on the latest arthritis and advocacy information!