Getting informed about biosimilars!

Some provinces and private plans are implementing biosimilar policies where the innovator biologics have gone off patent. This means that you may be approached by your physician to switch to a biosimilar medication. To help our community, we have a number of resources to help you learn more about biosimilars including this new video available in English and French. We also have a list of questions to ask a health care provider to understand what this means for you.

 

What have we been up to?

ICYMI: Webinar on an action plan for pain in Canada: Did you miss the webinar with CAPA President, Linda Wilhelm, speaking about the work of the Canadian Pain Taskforce? Don’t worry, you can play catch up and watch the webinar when it suits you best!  

Updated decision tool on COVID-19 vaccine – The decision tool on COVID-19 vaccination has been updated to reflect all vaccines now available in Canada and specific information for adolescents with rheumatic diseases. Learn more by visiting the Canadian Rheumatology Association website

New parenting resources! Together with Mamas Facing Forward, we have updated our parenting resources and they are now available on our website. The resources have been revamped and it includes updated advice from other parents living with rheumatic diseases and new information on coping and acceptance, dealing with fatigue and flares, and life hacks to help with day to day parenting tasks – visit our website to learn more! 

Take a Pain Check podcast – Natasha Trehan and Trish Peters both live with Juvenile Idiopathic Arthritis and co-host Take a Pain Check, a podcast that features guests that have made an impact in health care and the rheumatic disease community. CAPA 2nd Vice-President Laurie Proulx, spoke with Dr. Karine Toupin April, about their disease journeys, the research of the Choice Research Lab, and patient partnership in research and shared decision making. Listen to the podcast to learn more!  

Virtual care planner – Virtual care has been a blessing throughout the COVID-19 pandemic as it allows us to connect with a health provider through video or phone. We provided input into the development of a virtual care booklet and checklist developed by Save your Skin Foundation. Get the most out of your next appointment and review these new resources on our website! 

  

 

Get Involved!

Accessible Canada survey – The Government of Canada is developing a Disability Inclusion Plan and wants to hear from people with disabilities and caregivers. They are looking for feedback on financial security, employment, disability-inclusive spaces, and a modern approach to disability. Complete the survey and have your say about the government’s priorities! 

 

Are we “Being Seen” in the media? Do you feel there are authentic portrayals of your communities (e.g. disabled people) in Canadian media, or are there gaps in the way you are represented? Being Seen is a project looking to better understand these gaps. They are running a one hour focus group ($50 honorarium provided) and seeking participants willing to share their perspectives. Consider registering today to share your point of view

COVID-19 patient preference survey – Researchers at the University of Calgary are running a study to understand patient preferences and concerns for COVID-19 vaccinations in people with autoimmune rheumatic conditions. Take the survey and share your perspectives! 

 

Stay Informed!

GLA:D Canada free learning sessions – Do you live with knee or hip osteoarthritis? Consider signing up for two – 45 minute sessions to learn how to manage osteoarthritis symptoms and stay active. The sessions will provide information on the non-surgical treatment options currently available in Canada and includes a question and answer period. Learn more by visiting our website or registering directly on the GLA:D Canada website! 
 

 

New Health Canada warning for NSAID’s – Health Canada has completed a safety review about the use of non-steroid anti-inflammatory drugs (NSAIDs). They have determined that starting from approximately 20 weeks of pregnancy or later, these medications may cause rare but serious kidney problems in an unborn baby. Stay informed and read the alert on the Health Canada website! 

Website and social media updates – We are regularly updating our  websiteFacebookTwitterInstagram and YouTube channel with new information. Don’t forget to follow us on these social media channels to keep up to date on the latest arthritis and advocacy information!