CAPA @ CRA / AHPA meeting
CAPA Board Members, Dawn Richards and Laurie Proulx, both attended the annual Canadian Rheumatology Association (CRA) / Arthritis Health Professions Association (AHPA) meeting in Lake Louise, Alberta in February. Dawn made a presentation about theArthritis Patient Charter at the AHPA meeting and Laurie presented a poster (pictured below) highlighting the results of the pregnancy and parenting with arthritis survey. Many interesting discussions and engagement followed with researchers, clinicians, health care professionals and others!
Patient Poll highlights concerns with BC Pharmacare
The BC government instituted a reference-based pharmacare program for certain drugs in 1995 and plans on expanding the program in June of this year. CAPA Board Member, Don Mohoruk, is working with the Better Pharmacare Coalition (BPC) in British Columbia to keep on top of what’s going on and ensure CAPA can influence health care policy decision-makers. Read all about recent developments in BC Pharmacare including the results of a BPC poll inthis report from Don…
CAPA 2nd Vice-President, Laurie Proulx, presenting the poster highlighting the pregnancy and parenting with arthritis survey results at the annual Canadian Rheumatology Association (CRA) conference.
Cassie & Friends: Educating School kids about Juvenile Arthritis (JA)
Calling patients living with Juvenile Idiopathic Arthritis (JIA)! CAPA collaborates with many arthritis reseachers including Dr. Lucie Brosseau and Dr. Sabrina Cavallo from the University of Ottawa. They are seeking participants to take part in a study evaluating the effectiveness and impact of an on-line educational program for adolescents with JIA. Visit the CAPA website to learn how to participate in the study. Register now and contribute to this important research!OMERACT survey – OMERACT is an initiative to develop and refine Outcome Measures in Rheumatology (OMERACT). These outcome measures are used in clinical trials to measure benefits and safety of different treatments. Take this survey to identify the outcomes that are important to you as a patient when making decisions about your health. The survey will only take 10-15 minutes to complete. This is your chance to contribute!
Chronic Pain Research Network funded – CAPA is taking part in a new large Canadian network pioneering developments in patient-oriented health care for chronic pain research and care. Read more about how this network will focus on outcomes that are important to patients…Drug review submissions – CAPA has continued to provide input to the review of drugs by publicly funded drug plans such as CADTH and the Ontario Drug Benefit plan. Read CAPA’s submission for Canakinumab for Systemic Juvenile Idiopathic Arthritis and Secukinimab for Ankylosing Spondylitis (AS) as well as Psoriatic Arthritis.
CAPA @ International Conference on Reproduction, Pregnancy and Rheumatic Diseases
CAPA Board Member, Nathalie Robertson (pictured on the right), attended the international conference on Reproduction, Pregnancy and Rheumatic Diseases. She proudly presented a poster highlighting the CAPA pregnancy and pregnancy survey results. Read Nathalie’s meeting report and learn about the latest advances in this important field.
Biologics and Biosimilars: What’s the difference? CAPA continues to keep an eye on what’s going on in terms of drug plan funding of biosimilars. Stay informed and learn about the difference between biologics and biosimilars here.
Arthritis Self-Management and Chronic Pain Resources – The Arthritis Society offers a variety of resources to help you in managing your arthritis and chronic pain. Read up about their arthritis on-line self-management program and chronic pain workshops offered near you.
All about Clinical Trials – Has your doctor or health care professional ever approached you to participate in a clinical trial? If so, learn all you need to know about clinical trials including how it works, consent, terminology and more! The website was designed with the input of patients including CAPA Board Members, Don Mohoruk, Dawn Richards and Linda Wilhelm. Read all about it on the website: It Starts With me.
Claiming medical expenses on your taxes – We can all appreciate the large number of out of pocket medical expenses we pay in order to take care of ourselves. Learn what costs might be eligible to claim on your tax return on the Canada Revenue Agency website.
Taking Acetaminophen safely – Did you know that liver damage is one of the most common complications from taking Acetaminophen? Learn how to take this medication safely by reading this important safety information from Health Canada.
Website, Facebook & Twitter- Our website, Facebook page & Twitter account are updated regularly with new information. Don’t forget to follow us on Facebook and Twitter to keep up to date on the latest arthritis and advocacy information.