The Results of the Pregnancy and Parenting Survey are in! 
You spoke. We listened. Last Fall, we launched our pregnancy and parenting with arthritis survey to ask what you thought were the top issues of concern when considering pregnancy and when parenting. You told us that you need to know more about medication safety during pregnancy and breastfeeding. Other top rated issues including managing fatigue and flares and providing for the physical care of children. Learn about the survey results and other aspects of the project on the CAPAwebsite…
Patient Presence at the CADTH conference
The annual conference held by the Canadian Agency for Drugs and Technologies in Health (CADTH) is very worthwhile attending as stakeholders from all sectors attend including government, researchers, payers, patients and clinicians. CAPA President, Linda Wilhelm (pictured above), was invited to present at the closing plenary where she spoke of the importance of engaging patients and how evidence falls short of patient expectations. Read Linda Wilhelm’s report of the meeting here…

CAPA @ CRA / AHPA meeting 

CAPA Board Members, Dawn Richards and Laurie Proulx, both attended the annual Canadian Rheumatology Association (CRA) / Arthritis Health Professions Association (AHPA) meeting in Lake Louise, Alberta in February. Dawn made a presentation about theArthritis Patient Charter at the AHPA meeting and Laurie presented a poster (pictured below) highlighting the results of the pregnancy and parenting with arthritis survey. Many interesting discussions and engagement followed with researchers, clinicians, health care professionals and others!

Patient Poll highlights concerns with BC Pharmacare

The BC government instituted a reference-based pharmacare program for certain drugs in 1995 and plans on expanding the program in June of this year. CAPA Board Member, Don Mohoruk, is working with the Better Pharmacare Coalition (BPC) in British Columbia to keep on top of what’s going on and ensure CAPA can influence health care policy decision-makers. Read all about recent developments in BC Pharmacare including the results of a BPC poll inthis report from Don…

CAPA 2nd Vice-President, Laurie Proulx, presenting the poster highlighting the pregnancy and parenting with arthritis survey results at the annual Canadian Rheumatology Association (CRA) conference.

Cassie & Friends: Educating School kids about Juvenile Arthritis (JA)

Have you ever wondered what it’s like to be a kid with JA in school?Cassie & Friends Society, a BC-based charity founded by parents, knew all too well the stigma and struggles their children with JA faced in the classroom, gym class and playground. Learn more about their Kids on the Block Performance Program…
A day in the life of a patient advocate…
Advocacy doesn’t have to be complicated. You can simply tell a friend or neighbour how arthritis affects your life. CAPA Board Member, Janet Gunderson raised her voice and spoke to her local Member of Parliament about arthritis. Get inspired and read about her experience here… 
Get Involved!
Participate in a SuPER study! Fortunately, there are a number of treatment options for people living with inflammatory arthritis including Disease Modifying Anti-rheumatic Drugs (DMARDS) and biologics. However, it can be a struggle to decide which treatment options are right for you. To help patients in making these choices, Dr. Linda Li from Arthritis Research Canada, has developed an decision aid to Support Patient care with an Electronic Resource (SuPER) and is evaluating how well it helps patients making these decisions.  Click here to learn how to participate.

Calling patients living with Juvenile Idiopathic Arthritis (JIA)! CAPA collaborates with many arthritis reseachers including Dr. Lucie Brosseau and Dr. Sabrina Cavallo from the University of Ottawa. They are seeking participants to take part in a study evaluating the effectiveness and impact of an on-line educational program for adolescents with JIA. Visit the CAPA website to learn how to participate in the study. Register now and contribute to this important research!OMERACT survey – OMERACT is an initiative to develop and refine Outcome Measures in Rheumatology (OMERACT). These outcome measures are used in clinical trials to measure benefits and safety of different treatments. Take this survey to identify the outcomes that are important to you as a patient when making decisions about your health. The survey  will only take 10-15 minutes to complete. This is your chance to contribute!

What have we been up to?

Chronic Pain Research Network funded – CAPA is taking part in a new large Canadian network pioneering developments in patient-oriented health care for chronic pain research and care.  Read more about how this network will focus on outcomes that are important to patients…Drug review submissions – CAPA has continued to provide input to the review of drugs by publicly funded drug plans such as CADTH and the Ontario Drug Benefit plan. Read CAPA’s submission for Canakinumab for Systemic Juvenile Idiopathic Arthritis and Secukinimab for Ankylosing Spondylitis (AS) as well as Psoriatic Arthritis.

Health Central highlights patient stories  – Health Central is a great source of information to help manage your arthritis, thanks to the many contributions of people living with arthritis including our 1st Vice President, Dawn Richards. Read how she feels that Everyone has a Voice – they just need to find it.

CAPA @ International Conference on Reproduction, Pregnancy and Rheumatic Diseases

CAPA Board Member, Nathalie Robertson (pictured on the right), attended the international conference on Reproduction, Pregnancy and Rheumatic Diseases. She proudly presented a poster highlighting the CAPA pregnancy and pregnancy survey results. Read Nathalie’s meeting report and learn about the latest advances in this important field.


A day in the life of a patient advocate…
Advocacy doesn’t have to be complicated. You can simply tell a friend or neighbour how arthritis affects your life. CAPA Board Member, Janet Gunderson raised her voice and spoke to her local Member of Parliament about arthritis. Get inspired and read about her experience here… 
Stay Informed!

Biologics and Biosimilars: What’s the difference? CAPA continues to keep an eye on what’s going on in terms of drug plan funding of biosimilars. Stay informed and learn about the difference between biologics and biosimilars here.

Arthritis Self-Management and Chronic Pain Resources – The Arthritis Society offers a variety of resources to help you in managing your arthritis and chronic pain. Read up about their arthritis on-line self-management program and chronic pain workshops offered near you. 

All about Clinical Trials – Has your doctor or health care professional ever approached you to participate in a clinical trial? If so, learn all you need to know about clinical trials including how it works, consent, terminology and more! The website was designed with the input of patients including CAPA Board Members, Don Mohoruk, Dawn Richards and Linda Wilhelm. Read all about it on the website: It Starts With me.

Claiming medical expenses on your taxes – We can all appreciate the large number of out of pocket medical expenses we pay in order to take care of ourselves. Learn what costs might be eligible to claim on your tax return on the Canada Revenue Agency website.

Taking Acetaminophen safely – Did you know that liver damage is one of the most common complications from taking Acetaminophen? Learn how to take this medication safely by reading this important safety information from Health Canada.

Website, Facebook & Twitter- Our websiteFacebook page & Twitter account are updated regularly with new information. Don’t forget to follow us on Facebook and Twitter to keep up to date on the latest arthritis and advocacy information.