In this month’s newsletter:
- Webinar on Cardiovascular Disease and Arthritis
- Patient Support Programs Survey Resources
- CAPA Member Featured in Campaign
- Healthy Pregnancy Hub Launch
- Francophone Advisory Members Needed
- Repose Study Seeks Participants
- Shortage of Erelzi®
- Rheumatoid Arthritis Videos
December Webinar
Webinar on Cardiovascular Disease and Arthritis
Want to learn more about cardiovascular disease and arthritis?
As part of our Annual General Meeting, Dr. Bindee Kuriya, CAPA Medical Advisory Committee Member, will lead an education session. Bring your questions and join us on December 10th at 6:00 pm EDT.
Prefer to send your questions in advance? Email director@arthritispatient.ca.
What we have been up to?
Patient Support Programs Survey Resources
A number of infographics are now on our website with results from 375 responses to our Patient Support Programs (PSPs) survey.
The infographics include demographic information about survey participants, the services accessed and satisfaction levels, and recommendations for improvement.
CAPA’s Linda Wilhelm and Laurie Proulx discussed these results at a webinar on October 15, 2024.
CAPA Member Featured in Campaign
CAPA Member Linda Roy shared her story of living with rheumatoid arthritis and what led to her role in advocacy as part of the Immunocompromised Voices campaign. The campaign is by Patient Voice in collaboration with the Canadian Immunocompromised Advocacy Network (CIAN).
Healthy Pregnancy Hub Launch
CAPA’s Managing Director Laurie Proulx spoke about her experiences accessing medication during pregnancy at the launch of the Healthy Pregnancy Hub on November 19, 2024.
Through its scientifically backed resources, fact sheets, and chatbot, the online hub highlights the safety, benefits and risks of medications during pregnancy.
Francophone Advisory Members Needed
Parlez-vous français? Join CAPA’s new Francophone Support and Advisory Committee. Through your involvement, you’ll help guide us in creating French-language resources and support for Francophones living with, or affected by arthritis.
The committee runs January – April, 2025, and an honorarium of $250 is available.
Apply by January 15, 2025.
Click here to access the application information in English
Click here to access the application information in French
Repose Study Seeks Participants
Do you have inflammatory arthritis and struggle with sleep? Join the Repose Study to test-drive an 8-week online cognitive behavioural therapy (CBT) program. Participants will also complete 3 surveys and receive a $10 gift card for each completed survey.
The study is open to Canadian residents 18-80 years old. Visit www.reposestudy.ca to sign up, or email for more information.
Stay Informed
Shortage of Erelzi®
On October 28, 2024, the Canadian Rheumatology Association (CRA) provided information about a potential shortage for the biosimilar medication, Erelzi® (also known as Etanercept).
The post on the CRA website includes details about the drug manufacturer’s communication with prescribers and where to find the most current information about the shortage.
If you have questions about the shortage email director@arthritispatient.ca.
Rheumatoid Arthritis Videos