Community spotlight
Dr. Cheryl Barnabe: Making a difference for Indigenous people with rheumatic conditions
Dr. Bindee Kuriya: Helping rheumatic disease patients with matters of the heart
We are so fortunate to have these people leading the way in rheumatology care.
What have we been up to?
COVID-19 vaccine boosters – We created a short resource that outlines the eligibility criteria and additional information about the COVID-19 booster shots by province or territory. Learn more about by reading this new resource on our website!
CADTH patient input submission for anifrolumab for Lupus – We would like to thank people who completed the survey and shared their experiences of living with Systemic Lupus Erythematosus (SLE). Your perspectives were valuable as we drafted this patient input submission that is now available on our website.
Baring it All update – We presented to private plan designers and employers in mid-February and developed a tip sheet to help design benefit plans that meet the needs of women+ with rheumatic and psoriatic diseases. We will also presented key findings from the Baring it All report at the Canadian Rheumatology Association meeting – check out the poster, video, and our new microsite!
Miss the CRA Conference? Check out the live reporting on Twitter – We polled the Twitter community to tell us which sessions to attend at the CRA conference. We attended the sessions on pain management, the impact of the pandemic on rheumatology, skin concerns and rheumatic disease, and equity and diversity. Check out the #CAPAChat #ASM2022 hashtags to follow along!
Our 2022 Strategic Plan – We have finalized our strategic plan for 2022 that outlines our plans and priorities. We plan on supporting member engagement in research, launch a youth-focused project with Take a Pain Check and start to develop relationships that reflect the diversity of the arthritis community.
Get Involved!
Have chronic pain? Take part in the Circa Pain study today! The Circa Pain project – led by researchers at Queen’s University – hope to unravel some of the similarities and differences between the pain experiences of individuals. If you agree to participate, surveys will be administered three times a day over a week – learn more by visiting the study website or the CAPA website.
Drug shortages? Let us know! Have you experienced any drug shortages? We are monitoring the situation since we are seeing issues with deliveries of many essential items. Please let us know so we can better advocate for your needs – contact us directly today!
Stay Informed!
Nova Scotia Pharmacare biosimilars initiative – The Nova Scotia government announced a biosimilars initiative where patients will have 12 months to move to biosimilar medications. Visit the government website to learn more.
Free webinar on non-visible disabilities and work – Research Alliance for Inclusive Employment (REINVENT) is offering a free webinar on “Disclosure among persons with non-visible disabilities and illnesses at work”. Register today for this free event!
Legal rights of employers at work – People living with rheumatic diseases can find it to understand legal rights at work. Check out this resource developed by the Canadian Association of Psoriasis Patients and Canadian Psoriasis Network to learn more!
We have many resources for you! We have educational resources for you on a range of topics, including ones focused on pregnancy, workplace, and parenting. Don’t forget to follow us on Facebook, Twitter, Instagram and YouTube channel to stay up to date on the latest arthritis and advocacy information!