CAPA’s new Strategic Plan 

Read all about CAPA’s 2024 Strategic Plan! We are Canada’s only independent, volunteer-based arthritis patient organization run by patients for patients. We engaged a wider variety of people in the arthritis community in our strategic planning discussions late in 2023. Learn more about our values, mission, partnerships, and more.

Tell us your thoughts about our plans by emailing our Managing Director directly!

 

What have we been up to?

 

Patient perspectives at the CRA annual scientific meeting – Our We are pleased that many people with arthritis involved with CAPA will be presenting at various workshops at the Canadian Rheumatology Association Annual Scientific Meeting. Learn more about these workshops here!

Two new blog posts! – We have two new blog posts available on the new Blog section of our website. Read about Jillian Banfield’s experience with total ankle replacement surgery and CAPA President, Linda Wilhelm’s news update about a new clinic in Thunder Bay that will offer support from an Advanced Clinician Practitioner in Arthritis Care (ACPAC).

Rheumatoid Arthritis Care Experiences of Black People Living in Canada – Therese Lane, a member of CAPA’s Steering Committee, is one of the authors of Rheumatoid Arthritis Care Experiences of Black People Living in Canada: A Qualitative Study to Inform Health Service Improvements. This paper discusses the care experiences of Black Canadians with rheumatoid arthritis and proposes ways to reduce and mitigate inequities for Black people living in Canada.

Get Involved!

Public commentaries on opioids and cannabis for chronic pain -​ McMaster University’s Michael G. DeGroote National Pain Centre‘s guideline group along with their guideline panel has created recommendations regarding opioids and cannabis use for chronic pain. They are publicly posting their draft recommendations to seek input before publication and dissemination. Comments will be accepted via online surveys until 12pm ET on February 29, 2024. The surveys should take no more than 20 minutes each to complete.

Research opportunity for French speakers living with arthritis – Arthritis Research Canada is still looking for French-speaking participants to participate in their French discussion group. They are inviting people with inflammatory arthritis to participate in a 2-hour online discussion group to discuss a new way of providing healthcare for arthritis that better meets patient’s needs. Participants would receive $30 for their participation. Click here to learn more.

 

 

Help test the #CarteD’optionsEnAJI! – A University of Ottawa team led by Dr. Karine Toupin-April has developed the JIA Option Map, a web application that helps young people and their families make decisions about pain management treatments. They are asking French-speaking people to use the web application and answer some questions to provide feedback and help improve it. To participate and learn more, email Dr. Karine Toupin April at ktoupina@uottawa.ca or click here!

Survey about rehab care after total joint replacement – A UBC research team is studying patient experiences and quality of care during their rehab after total joint replacement. The survey closes on February 28, 2024, and two $50 Indigo gift cards will be offered as prize draws! To complete the 20-25 minute survey click here!

Stay Informed

Featured on the asPERusual podcast – CAPA President, Linda Wilhelm appeared on the asPERusual podcast’s episode titled “SPOR Evidence Alliance” alongside Dr. Andrea C. Tricco. They discussed the Strategy for Patient-Oriented Research (SPOR) Evidence Alliance, a pan-Canadian initiative designed to promote evidence-informed health policy and practice change, with host Anna M. Chudyk. Listen here!

Report on survey about sexual and reproductive health of women+ with rheumatic diseases – Baring it All looks at the needs and experiences of women+ with inflammatory arthritis, psoriasis, and rheumatic diseases across life stages. It also discusses contraception, sexual health, family planning considerations, parenting, and menopause for those with these conditions.

New health product safety information about Plaquenil and Prolia – The January issue of the Health Product InfoWatch published by Health Canada is available. This monthly publication provides safety information on pharmaceuticals, biologics, medical devices and natural health products. This issue includes updates about Plaquenil and Prolia.

Falls Prevention Clinic – Falls can be a challenge for people living with arthritis and can lead to injuries that can cause loss of mobility, function, independence, and quality of life. Fortunately, falling can be prevented. The Falls Prevention Clinic based in British Columbia, includes resources to prevent and manage falls using evidence-based strategies to identify individual risk of falling.

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