Newsletter – June 2025

07-01-2025
In this month’s newsletter:
  • Improve Drug Shortage Support for People With Arthritis
  • CAPA President, Linda Wilhelm, on the EGO (Everybody’s Got an Opinion) with Derrick Barr Podcast
  • Submissions to Canada’s Drug Agency (CDA-AMC)
  • Help Shape Research About Living Independently with Arthritis
  • Breathing and Gentle Movement: 20-minute Chair Yoga

Improve Drug Shortage Support for People With Arthritis 

We are leading a project to improve how drug shortages are tracked and how people living with arthritis are supported when they happen. We’re asking people living with arthritis to participate in a one-hour interview to share their experiences and ideas. An honorarium will be offered for your time.

If you are interested in participating or want to learn more, visit our webpage or complete this form, and we’ll be in touch.

What have we been up to?

Endorsing the Joint Mandate Letter (JML) to Prime Minister Mark Carney
On May 22nd, CAPA and several other organizations endorsed a letter by the Resilient Healthcare Coalition (RHC) calling on Prime Minister Mark Carney to improve how health data is used across Canada, expand access to innovative care, and support the life sciences sector. Read the letter here.
Oral Abstract Presentation at EULAR 2025 (the European Alliance of Associations for Rheumatology
On June 14th, Natasha Trehan, founder of the Take a Pain Check Foundation, presented on our Make Rheum for Youth Project at the EULAR 2025 Conference (the European Alliance of Associations for Rheumatology). The presentation discussed the school and workplace needs of young people living with rheumatic disease.
CAPA President, Linda Wilhelm, on the EGO (Everybody’s Got an Opinion) with Derrick Barr Podcast

Linda Wilhelm had a conversation with Derrick Barr about the growing prevalence of arthritis in Canada. Listen to the episode, “Conversation About the Arthritis Epidemic in Canada,” here.

Submissions to Canada’s Drug Agency (CDA-AMC)

Contributed to the Best Medicines Coalition’s (BMC) Submission to the Canada’s Drug Agency (CDA-AMC)

As a member of the Best Medicines Coalition (BMC), CAPA contributed to a submission to Canada’s Drug Agency (CDA-AMC) on patient input to support reimbursement deliberations. Read the submission here.

Joint Submission to Canada’s Drug Agency (CDA-AMC) on Upadacitinib (Rinvoq) for Giant Cell Arteritis

CAPA worked with Arthritis Society Canada, Vasculitis Foundation Canada, and Vision Health Initiatives, on a patient submission to Canada’s Drug Agency (CDA-AMC) on how Upadacitinib (Rinvoq) can help people living with Giant Cell Arteritis. Read the submission here.

Get Involved

Help Shape Research About Living Independently with Arthritis

More than 6 million people in Canada have arthritis. It can make daily life harder—especially when spaces or tools aren’t easy to use. Right now, there is no clear answer on which assistive devices work best.

If you live with arthritis or work in health care, you can help guide future research. Join a virtual meeting in Fall 2025. This project is guided by a Steering Committee of patient partners and health researchers. To learn more or participate, email our Managing Director, Laurie Proulx, at director@arthritispatient.ca.

 

Applications for the Canada Disability Benefit (CDB) are Open
Applications for the Canada Disability Benefit (CDB) opened on June 20th! You can apply online, by phone, or in person at a Service Canada Centre. You are eligible to apply if you are between the ages of 18 to 64, have qualified for the disability tax credit, and meet the benefit’s other eligibility requirements. For more details, go to the Canada Disability Benefit website.

 

 

Useful Resources

Breathing and Gentle Movement: 20-minute Chair Yoga

Did you miss our Breathing and Gentle Movement webinar earlier this month? It is now available on our YouTube channel!

Join along in a 20-minute chair yoga session led by Carol Reece, a yoga instructor living with spondyloarthritis. Watch here!

Thank you to ParticipACTION, for funding this session.

How Occupational Therapy Helped Me Live Better with Arthritis
In this blog post, Kelly-Maude Amaral shares how occupational therapy has given them back their confidence in themselves, in their abilities, and has allowed them to take control of their daily life. Learn more about the specific ways occupational therapy has benefited Kelly-Maude.
Bringing designers into healthcare: Meet Olivia Pasian, Ontario College of Art and Design Practicum Student
In this blog post, Olivia Pasian, a Master of Design student, talks about how they will create and design clear and engaging visuals and content to help CAPA share research in a more accessible way. Learn more about Olivia here.
Connected Care: Improving Information Flow
The Canadian Institute for Health Information(CIHI) and Canada Health Infoway (Infoway)’s Connected Care offers a future where patients do not have to repeat their medical history and medications with every healthcare provider they see. CAPA is delighted to have contributed to their patient video. Learn more here.
en_USEnglish
fr_CAFrançais du Canada en_USEnglish
Powered by TranslatePress