Newsletter – October 2023

10-30-2023

Rheum For Your Mind mental health workshops happening this month!

We are pleased to announce that we are co-hosting Rheum for your Mind workshops with Take a Pain Check Foundation. We held our first workshop on October 14th where we heard from Dr. Andrea Knight (rheumatologist) and Dr. Katie Birnie (psychologist). It’s not too late to register for the second workshop on October 28th where you will hear from Pamela Jarvis (social worker) and an interactive panel of youth, parents, and adults who live with juvenile arthritis.

Register for the second workshop today! 

What have we been up to?

Coffee for CAPA – For Arthritis Awareness Month in September, CAPA held their 2nd annual fundraiser to raise funds to continue being able to provide the community with resources and support. We raised $750 and want to thank everyone for their contributions!

Make Rheum for Youth Infographics – In September 2022, we launched a survey in collaboration with Take a Pain Check Foundation to better understand the needs of youth and young adults with rheumatic disease. We hired a young person with rheumatic disease (Isabel Dukes) to analyze the Make Rheum for Youth survey and we are pleased to share the initial findings.

New Life Hacks resources available! – Bella Cairns, an occupational therapy student at McMaster University, worked with us over the summer. She wrote a blog post and created infographics that explain what OT’s can do for people with arthritis and tips and tricks to manage daily cooking tasks and how to live well with arthritis.

Upcoming COVID-19 Vaccines Webinar  – Please join us for a unique educational webinar about COVID-19 and other vaccines at our Annual General Meeting (AGM) on November 4th from 12 pm to 2 pm EDT. CAPA Vice-President, Dr. Dawn Richards will moderate a discussion with a panel of experts including Nadine Lalonde, Dr. Inés Colmegna, and Dr. Dawn Bowdish. Register for this webinar about COVID-19 and other vaccines here.

Get Involved!

 

Survey about Evaluating Patient Partnership in Cardiovascular Research​ – Dr. Kelly Cobey, a researcher at the University of Ottawa Heart Institute, and her team are seeking patient partners and cardiovascular researchers to participate in a survey. The survey is available in English and French until October 31, 2023. To learn more about eligibility and compensation click here.
Join a new Youth Committee – Calling all youth and young adults living with rheumatic diseases! We are recruiting for a new Youth Committee that will develop educational resources based on the findings of the Make Rheum for Youth survey with the Take a Pain Check Foundation. If you are interested in participating in the Youth Committee, please email or send a short video to contact@arthritispatient.ca and/or info@takeapaincheck.com by November 15, 2023.
Survey about Living with Knee and/or Hip Osteoarthritis – Do you have knee and/or hip osteoarthritis and live in Canada? The University of Toronto invites you to take an anonymous online survey which will take about 20 minutes. The survey asks you to rank health issues from least to most worrisome. The survey will be open until November 10, 2023.
Feedback Opportunity: Membership Survey – As an organization that is run by and for patients, CAPA wants to hear from you! How well are we doing? What more can we do to meet your needs? Please take this 10-minute survey and help us shape CAPA’s activities in 2024 and beyond. All responses are anonymous and confidential. We are also offering three $50 VISA gift cards for participants, winners will be randomly drawn.

Stay Informed

8th annual Patients Redefining the Future of Health Care in Canada Summit – The Summit will be co-hosted by the Canadian Psoriasis Network and Save Your Skin Foundation. Join patients, caregivers, and other healthcare stakeholders from across the country virtually the week of November 13th. Register here!

Top 10 research priorities for OT for Musculoskeletal Conditions & Arthritis released – The Canadian Association of Occupational Therapists (CAOT) worked with the James Lind Alliance in a Priority Setting Partnership (PSP) to identify the top 10 research priorities for occupational therapy for MSK conditions and arthritis in Canada. Check out the top 10 priorities here!

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