Lived Experience Webinar: Navigating Healthcare

Lived Experience Webinar: Navigating Healthcare

We invite you to an upcoming webinar about navigating the healthcare system on Wednesday, February 18, 2026 at 7:00 PM EDT. This session will highlight real-life perspectives on accessing care, communicating with healthcare providers and managing challenges within the...
The Patient Room: Chat and Learn for Patient Partners Webinar

The Patient Room: Chat and Learn for Patient Partners Webinar

On October 15th, 2025, CAPA hosted The Patient Room: Chat and Learn for Patient Partners webinar. Participants were invited to join Therese Lane and Linda Wilhelm for a candid Q&A about lived experience in research and policy—where they started, where they are...
CAPA Lived Experience Webinar on November 19, 2025

CAPA Lived Experience Webinar on November 19, 2025

The CAPA Lived Experience Webinar will take place on Wednesday, November 19, 2025, at 6:00–7:30 PM Eastern Time as part of the Annual General Meeting (AGM). REGISTER HERE.  This session explores the challenges, emotions, and lessons learned through the process of...
The Patient Room: Chat & Learn for Patient Partners

The Patient Room: Chat & Learn for Patient Partners

October 15, 2025 • 12:00–1:00 pm ET     Join us for an informal lunchtime session where Linda Wilhelm and Therese Lane share their journeys as patient partners in research and policy. They’ll reflect on: Where they started, and where they are today The...
Rare Rheumatic Disease Drop-In – Recording Now Available!

Rare Rheumatic Disease Drop-In – Recording Now Available!

Living with a rare rheumatic disease can feel isolating—but you’re not alone. On Rare Disease Day (February 28, 2025), CAPA hosted a special Rare Rheumatic Disease Drop-In, co-hosted by community members Janet Gunderson and Natalie Boivin, who shared their lived...
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