We launched a survey to understand the experiences of people living with rheumatic disease with Patient Support Programs (PSPs). PSPs were introduced in the early 2000s when biologics came onto the market to support health care providers monitor patients taking these medications. The services also help patients navigate the complexity of getting high-cost medications reimbursed and understand how to administer the medication(s).
The goal of the survey was to directly evaluate patients experienced with PSPs and report on them using a patient lens. We received 375 responses to the survey and the infographics below highlight a number of key survey findings, such as:
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- who responded to the survey
- what services were accessed, and
- satisfaction with a range of services offered by PSPs.
Survey Results
Webinar and Recommendations
We held a webinar on October 15, 2024 where we presented the survey findings and key recommendations to improve PSPs for patients. These recommendations are important for industry, payers, and governments to consider as part of their efforts to improve the patient experience.
Policy Submissions and Presentations











