Living with a rare rheumatic disease can feel isolating—but you’re not alone. On Rare Disease Day (February 28, 2025), CAPA hosted a special Rare Rheumatic Disease Drop-In, co-hosted by community members Janet Gunderson and Natalie Boivin, who shared their lived experiences and opened the floor to others affected by rare rheumatic conditions.

This informal conversation created space for connection, support, and learning among people who truly understand what it means to live with a rare rheumatic disease.

If you missed it, the recording is now available to watch.

• Hear real stories from the community
• Learn from lived experience
• Feel more connected and supported

Click the video below to watch the full recording.