On June 18, we offered a final webinar in a three part series that explains the process in Canada from discovering a new drug to getting the drugs paid for or covered by various public and private insurance plans. The webinars presented by the expert speakers provided...
Comment un ergothérapeute peut-il aider les personnes atteintes d’arthrite? Bella Cairns, étudiante en ergothérapie, nous a aidés à répondre à cette question et à d’autres en créant un article de blogue et une infographie qui expliquent ce que les ergothérapeutes peuvent faire pour les personnes atteintes d’arthrite. Veuillez lire...
CAPA presents Pain Talks with Linda Wilhelm and Eileen Davidson sharing their experiences with and managing chronic pain. Watch these videos to learn what they say.
Many people that live with arthritis understand the invisible or hidden parts of living with the disease – for example, pain that limits shopping and other activities of daily living or fatigue that affects how long they can stand or work. On June 1, 2023. Dr. Dorothy...
CAPA hosted #ArthritisThenNow Twitter Chat on Saturday, September 26, 2020. The chat was well-attended and had some great discussions about how arthritis treatment, care, and the experience have changed or stayed the same over the past few decades with...
You are invited to a special VIP ZOOM watch party for “The Newest Normal” fashion collection created by fashion designer and CAPA Board member Michael Kuluva and presented by CreakyJoints, on Wednesday, September 16, 2020 at 7:30 PM ET!
Join us on Saturday, September 26th at 12 p.m. Eastern Time for a Twitter Chat on #ArthritisThenNow. We’ll be chatting about how arthritis treatment, care, and the experience have changed or stayed the same over the past few decades and much more.
This resource is part of a number of projects under the theme of TEAM (Together Enhancing Arthritis Management). Become familiar with 3 different types of inflammatory arthritis: Ankylosing Spondylitis Psoriatic Arthritis Rheumatoid Arthritis Learn about arthritis and...
The RA Matters project aims to discover what people living with rheumatoid arthritis (RA) truly feel about life with the condition as well as the opinions of healthcare professionals who treat RA. This site provides an opportunity for people to explore the results of...
This resource is part of a number of projects under the theme of TEAM (Together Enhancing Arthritis Management). By the end of the session, you will: Understand the goals of treatment in inflammatory arthritis Understand the role of medications in treating...
CAPA hosted a Twitter Chat on arthritis in the work place on Saturday, October 12, 2019, to correspond to World Arthritis Day. The chat was well-attended and we had some great discussions about #ArthritisAtWork with co-host Simon Stones and special guest, Creaky...
Check out the the workplace tools and podcast developed by The Arthritis Society. It includes information on workplace accommodations, employment standards as well as interactive podcasts and videos.
At CAPA, we are patients too. We know that a diagnosis of arthritis means changes at work. Dealing with the changes can be challenging at best. You might wonder about what you can do to make things easier for yourself while working. Or about what your...
In January 2024, Take a Pain Check (TAPC) and the Canadian Arthritis Patient Alliance (CAPA) teamed up to create a Youth Committee composed of youth and young adults with lived experience of arthritis. The committee's goal was to share their knowledge and experience...
In October 2023, we co-hosted two workshops for youth and young adults with rheumatic diseases with Take a Pain Check Foundation. The first workshop was held on October 14, 2023 and participants learned from rheumatologist, Dr. Andrea Knight, as she...
Take a Pain Check (TAPC) Foundation and the Canadian Arthritis Patient Alliance are both community-led organizations that support people with arthritis as they navigate life and healthcare. In 2022, we launched a project called “Make Rheum for Youth” in order to...
In September 2022, we launched a survey to better understand the needs of youth and young adults with rheumatic disease. The “Make Rheum for Youth” project was a collaboration with Take a Pain Check Foundation, a youth led organization with a goal of empowering youth...
We know arthritis affects people at any age and can have an impact on reproductive health and being a parent. To better support people with arthritis, we held two webinars about pregnancy and parenting with arthritis. This educational series was part of a...
Researchers at the University of Toronto and the Centre for Addiction and Mental Health created this resource based on findings from a National Institutes of Health funded study on the perinatal health and health care experiences of women with physical, sensory, and intellectual/developmental disabilities in Ontario, Canada. The study advisory committee, which includes women and parents with disabilities, provided feedback on this resource.
On September 26, 2018, CAPA hosted a Twitter Chat on arthritis and pregnancy/parenting. #ArthritisParent was a first for CAPA. The results of Twitter Chat were analyzed and presented in a poster at the Canadian Rheumatology Association conference.
Parenting is challenging. Living with inflammatory arthritis adds another variable that also needs to be considered. For those considering starting a family, or for those who already have a family, concerns about quality of life are never far. To understand the...
Are you contemplating a step into parenthood and also live with inflammatory arthritis?
Arthritis affects individuals in many aspects of their life including decisions regarding pregnancy and in carrying out their role as a parent. As a result, CAPA has launched a project to identify patient information needs as it relates to pregnancy and parenting. The...
In collaboration with two occupational therapy students from McMaster University, CAPA launched a survey to understand how people with arthritis use assistive devices and life hacks in daily life.
Global Healthy Living Foundation (GHLF), CreakyJoints Canada and the Canadian Arthritis Patient Alliance (CAPA) have come together during September, Arthritis Awareness Month, to provide the inflammatory arthritis community with this tip sheet on how to best protect...
Do you have difficulties in cooking or living well with arthritis? Occupational therapy student, Bella Cairns, interviewed 14 people with arthritis and they provided their tips and advice on how they manage day to day cooking tasks and live well with arthritis. Learn...
Many people that live with arthritis understand the invisible or hidden parts of living with the disease – for example, pain that limits shopping and other activities of daily living or fatigue that affects how long they can stand or work. On June 1, 2023. Dr. Dorothy...
En collaboration avec Dragon Claw, un organisme de bienfaisance australien pour les personnes atteintes de maladies inflammatoires auto-immunes, l’ACA a développé une nouvelle ressource pour les personnes atteintes d’arthrite appelée « Connaissez vos chiffres ». Cette nouvelle ressource décrit une liste de tests sanguins régulièrement utilisés chez les personnes atteintes d’arthrite auto-immune et d’autres bilans de santé comme la pression artérielle, la densité minérale osseuse, etc. Vous trouverez également une liste aide-mémoire que vous pourrez imprimer et utiliser pour vos rendez-vous avec un rhumatologue ou un médecin de famille. La ressource a été examinée médicalement par le comité consultatif médical de l’ACA et d’autres médecins de Dragon Claw comme Dr Daniel Lewis, Dr Peter Bell, Dre Barbara Schumacher et Dre Kathleen Kett. Veuillez lire notre communiqué de presse et restez à l’affût pour d’autres actions visant à partager cette nouvelle ressource bilingue avec la communauté des patients.
On October 12, 2022, CAPA celebrated World Arthritis Day in our first-ever Twitter Spaces event about navigating the workplace with arthritis. It was a collaborative event that brough together Take a Pain Check Foundation, Creaky Joints Canada, and CAPA. The event was...
Inflammatory arthritis and psoriasis are each estimated to impact roughly one million people in Canada. The onset and diagnosis of these diseases commonly affects people in the prime of their lives and these individuals are often left with a variety of reproductive...
Now Launched! Baring it All: Final report from a survey on reproductive and sexual health in women+ with inflammatory arthritis, psoriatic, and rheumatic diseases.
We know there can be a lot of questions about the flu vaccine when you live with inflammatory arthritis. As people who live with arthritis, we put together some questions that our Medical Advisory Committee has answered for you here. Nous savons que le...
To help our network and community to navigate in the time of the COVID-19 pandemic, CAPA has pulled together a une liste de ressources d’information fondées sur des données probantes et d’autres liens utiles.
L’Alliance canadienne des arthritiques (ACA) travaille avec divers groupes du milieu de l’arthrite pour s’assurer que la voix des personnes atteintes d’arthrite est entendue et pour vous mettre à jour sur les questions qui touchent la communauté de l’arthrite. Nous travaillons avec des professionnels de la santé, des organismes de santé, des cliniciens, l’industrie, des organismes de bienfaisance dans le domaine de la santé, des chercheurs et divers paliers de gouvernement.
Nous aidons la population canadienne atteinte d’arthrite et leurs groupes de soutien à mieux comprendre leur maladie et à intervenir dans sa gestion.
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