Liens vers d’autres ressources
Rheuminfo
Information sur l’arthrite, y compris ses médicaments, compilée par le Dr Andy Thompson, rhumatologue canadien, à l’intention des patients et des professionnels de la santé.
Agence du revenu du Canada
Une série de vidéos qui expliquent les mesures fiscales pour les personnes handicapées.
Autres organisations
Arthritis Society Canada
Working closely with CAPA, Arthritis Society Canada is a national health charity, fueled by donors and volunteers, with a mission to fight the fire of arthritis through research, advocacy, innovation, information and support.
Cassie and Friends
Notre mission est de transformer la vie des enfants et des familles touchés par l’arthrite juvénile et d’autres maladies rhumatismales. Fondé par des parents, des jeunes et des médecins déterminés, nous avons recueilli plus de 2 millions de dollars pour la recherche qui change des vies, la défense des droits, l’équipement, l’éducation et des programmes de soutien pour les enfants et leur famille.
Canadian Early Arthritis Cohort (CATCH)
The Canadian Early Arthritis Cohort study (CATCH) is a research project run at various sites across Canada. It helps people who have early inflammatory arthritis, like rheumatoid arthritis. The goal is to make care better for people living with these conditions. CATCH offers:
- Over 100 short videos about living with arthritis
- Easy-to-read research summaries
- Helpful tools from arthritis groups across Canada
You can visit the CATCH website to learn more: https://earlyarthritis.ca
Arthritis Research Canada
Volunteer advocates with arthritis who bring personal experience and arthritis knowledge to research decision-making at Arthritis Research Canada (ARC). They ensure the patient’s perspective is represented in research on arthritis prevention, treatment and self-management. This ensures Arthritis Research Canada’s efforts remain grounded in the lived experiences and needs of those directly impacted by arthritis.
Alliance canadienne des patients en dermatologie
The Canadian Skin Patient Alliance (CSPA) is a registered charity and non-profit organization that improves the health and well-being of people across Canada affected by skin, hair and nail conditions. Founded in 2007, CSPA supports this mission through collaboration, advocacy and education initiatives for the skin patient community. As there are thousands of different skin conditions – and more than 1,000 rare skin diseases – CSPA helps bridge the gaps among the public, patients and their loved ones, healthcare professionals, and researchers.
Canadian Spondyloarthritis Association
The Canadian Spondyloarthritis Association (CSA) is a national, patient-led organization dedicated to supporting and advocating for Canadians living with Spondyloarthritis (SpA). Through education, research, and collaboration with the medical community, the CSA empowers patients with evidence-based resources and works to improve diagnosis, treatment access, and overall quality of life.
GLA:D™ Canada
Based on the success of the GLA:D® education and exercise program for knee and hip OA in Denmark, GLA:D™ Canada is an 8-week education and neuromuscular exercise program delivered by certified therapists for people with hip and/or knee osteoarthritis (OA). The GLA:D Canada program consists of two 90-minute education sessions, and twelve 60-minute exercises sessions classes taken twice a week. Participant outcome measures are collected in a national database at the start of the program, 3 and 12 months. These outcome measures are used to monitor the quality of the program across the country.
JointHealth™
Développé par Arthritis Consumer Experts (ACE), un organisme national dirigé par des patients qui offre gratuitement des programmes d’information et d’éducation scientifiques à jour sur tous les aspects des formes les plus courantes et les plus rares d’arthrite dans les deux langues officielles aux personnes atteintes d’arthrite.
https://www.takeapaincheck.com/
La fondation Take a Pain Check est un organisme à but non lucratif qui s’engage dans la mission et la vision de soutenir les jeunes et les jeunes adultes atteints de maladies rhumatismales par le biais des médias sociaux, d’initiatives diverses, de plaidoyer et de sensibilisation.
Vasculitis Foundation Canada
Vasculitis Foundation Canada’s mission is to encourage and support research efforts into the cause and cure of all forms of Vasculitis. To establish a rapport with all known vasculitis patients and to try and alleviate the isolation of having an uncommon, life-threatening disease. We want to assist vasculitis patients and their families with clinical information and coping strategies to help them develop a strong and positive outlook. We hope to create greater awareness of vasculitis within the medical community, and the general public. We organize and administer meetings, forums, and conventions for the sharing of information and ideas into the research, treatment, and diagnosis of vasculitis. Also see: www.vasculitis.ca.
Lorsque vous vivez avec l’arthrite,
l’information est votre outil le plus important.
L’Alliance canadienne des arthritiques (ACA) travaille avec divers groupes du milieu de l’arthrite pour s’assurer que la voix des personnes atteintes d’arthrite est entendue et pour vous mettre à jour sur les questions qui touchent la communauté de l’arthrite. Nous travaillons avec des professionnels de la santé, des organismes de santé, des cliniciens, l’industrie, des organismes de bienfaisance dans le domaine de la santé, des chercheurs et divers paliers de gouvernement.
Nous aidons la population canadienne atteinte d’arthrite et leurs groupes de soutien à mieux comprendre leur maladie et à intervenir dans sa gestion.
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