CAPA news

New study shows that life and career stage do matter when thinking about the impact of arthritis on employment

By Julie Bowring, Research Associate, Institute for Work & Health Arthritis affects 4.3 million Canadians, 60% of whom are under the age of 65. Not surprisingly, the health condition has a big impact on the ability of people with arthritis to find work and keep working throughout their lives. Yet, we know little about how […]

A Day in the Life of a Patient Advocate

By: Annette McKinnon I teamed up with Canadian Spondylitis Association President, Michael Mallinson, for a visit to our Member of Parliament Nathaniel Erskine-Smith. We are in the same riding and are both acquainted with him. We did not want to wait until too late in the summer because he and his wife are expecting a […]

Cassie & Friends Society holds largest JIA event in Canada

By: Jennifer Thompson In October 2016, Cassie & Friends welcomed over 350 kids, parents, caregivers, siblings, healthcare professionals and volunteers to their 8th annual Family Day conference for Juvenile Arthritis and other Rheumatic Diseases – the largest such event ever held in Canada. The 2016 conference theme was “Hand in Hand

A Day in the Life of a Patient Advocate

By: Linda Wilhelm A good percentage of New Brunswick Federal Ridings cover a large geographical area and are rural in nature and Fundy Royal and New Brunswick (NB) Southwest are no different. I live on the far boundary of NB Southwest, closer in proximity to Fundy Royal. Fundy Royal is also the riding that I […]

Patient Presence at the CADTH conference

By: Linda Wilhelm The CADTH meeting is very worthwhile attending as stakeholders from all sectors attend including government, researchers, payers, patients and clinicians. The networking opportunities are equal to those at the Canadian Rheumatology Association’s annual meeting. On my way to the opening session, I was walking in with a Board

Patient Poll highlights concerns with BC Pharmacare

By: Don Mohoruk A Reference Drug Program was introduced in British Columbia in 1995 as one of the programs that BC PharmaCare implemented to help contain drug costs. Under this program, reference-based pricing was applied to five different classes, one of which is Non-Steroidal Anti-Inflammatory Drugs. Under reference-based pricing, drug plans reim

Cassie & Friends: Educating school kids about Juvenile Arthritis (JA)

By: Jennifer Wilson Can you imagine being a child with juvenile arthritis (JA) in school? None of your friends have heard of it and your gym teacher says you just need to work harder. You try to keep up, and spend the weekend in pain. You miss a lot of school. Cassie & Friends Society, […]

Patient Presence at the CADTH meeting

By: Linda Wilhelm The CADTH meeting is very worthwhile attending as stakeholders from all sectors attend including government, researchers, payers, patients and clinicians. The networking opportunities are equal to those at the Canadian Rheumatology Association’s annual meeting. On my way to the opening session, I was walking in with a Board

CAPA newsletters

Newsletter – January 2022

Welcome to 2022! "2022 is feeling a lot like 2021!" said CAPA President Linda Wilhelm. January 2022 had been a busy start of the new year for CAPA team, as we have been engaged in providing patient input to CADTH submission for new lupus drug, preparing for a poster presentation at the CRA annual meeting and many more.

Newsletter – November 2021

This month CAPA has been participated in numerous events in support of the National Pain Awareness Week. Learn what we have done by reading our newsletter!

Newsletter – October 2021

CAPA had been busy with various activities over the month of October including involvement in the release of the Baring It All final report, Fashion Show, compiling information on the 3rd dose vaccine access in provinces and many more.

Newsletter – September 2021

Over the summer, CAPA had participated in the development of a CRA virtual care statement, voiced the patient perspective on proposed drug pricing changes on patients and did an extensive survey on sexual and reproductive health in collaboration with other patient groups. We had planned lots of fun activities for September, the Arthritis Awareness month!

Newsletter – June 2021

This month, CAPA team has been involved in the development of the video on a biosimilar medication. launching the new parenting resources, speaking at the webinar on an action plan for pain in Canada and many more!

Newsletter – May 2021

This month CAPA team has been busy advocating for the second dose of the COVID-19 vaccine for people with autoimmune rheumatic conditions, updating and launching our pregnancy resources and being at the forefront of "A call for action to #PrioritizePain" campaign. Learn more by reading our newsletter!

Newsletter – April 2021

In this newsletter edition, we invite you to provide input to the three very important surveys on the sexual and reproductive health in arthritis care, the COVID-19 vaccine access and the COVID-19 Global Rheumatology Alliance. Register and join us for the Shared decision making webinar on April 25th to be hosted by Dr. Claire Barber, Dr. Glen Hazlewood and Dr. Karine Toupin April.

Newsletter – March 2021

This month we continue informing you about the rollout of the COVID-19 vaccine which is currently underway and what this means to many people living with rheumatic diseases. Read more.

When you live with arthritis,
information is your most important tool.

The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.

We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.