CAPA news

CAPA Webinar on Shared Decision Making on April 25th at 1 pm EDT

Join CAPA community for a webinar on Shared Decision Making on Sunday, April 25th at 1:00 pm EDT with Drs. Claire Barber, Glen Hazlewood and Karine Toupin April to learn how it can help you build a better relationship with your health care provider.

Arthritis, COVID-19 and vaccines

CAPA's Medical Advisory Committee is sharing their perspective on Arthritis, COVID-19 and available vaccines. Listen to the full video conversation with Drs. Janet Pope, Carter Thorne and Cheryl Barnabe.

Arthritis and COVID-19

CAPA is having a conversation on Arthritis and COVID-19 pandemic with its Medical Advisory Committee, Drs. Janet Pope, Carter Thorne and Cheryl Barnabe. Listen to a full video chat.

Patient Engagement in Research: The Why and How

This video presents Dr. Dawn Richards, CAPA's 1st Vice President, sharing her own and other people experiences in patient and public engagement as partners on research teams.

CRA Recommendation for Covid-19 Vaccination in Persons with Autoimmune Rheumatic Disease

The Canadian Rheumatology Association (CRA) has developed a formal GRADE recommendation for Covid-19 vaccination in persons with autoimmune rheumatic disease. The recommendation focuses on the use of the 2 currently approved COVID vaccines: BNT 162b2 (Pfizer-BioNTech) and mRNA-1273 (Moderna). Click here to read the CRA Guideline.

Survey Participants Needed for Study on Virtual Primary Care

A research team based out of the University of Toronto and the Bruyere Research Institute is learning about people’s experience with virtual primary care in Ontario. Researchers are seeking participants for a survey about their experiences with telephone or video appointments in primary care.

Solutions For Kids In Pain (SKIP) Webinar on February 23rd, 2021

Solutions for Kids in Pain (SKIP) is a knowledge mobilization network based at Dalhousie University and co-directed by Children’s Healthcare Canada, and funded by the Networks of Centres of Excellence (NCE). Join the webinar on “Solutions for Kids in Pain (SKIP): Patients-Included Approach to Knowledge Mobilization” presented by t

A Meta-Analysis of the Study on Health of Newborns and Infants Born to Women with Disabilities

The newborn and infant periods are important for determining long-term health and development. The Disability and Pregnancy Study (a research program) presents the new report that summarizes existing literature on the health outcomes of newborns and infants born to women with disabilities. These findings also suggest the need to consider what servi

CAPA newsletters

Newsletter – April 2021

In this newsletter edition, we invite you to provide input to the three very important surveys on the sexual and reproductive health in arthritis care, the COVID-19 vaccine access and the COVID-19 Global Rheumatology Alliance. Register and join us for the Shared decision making webinar on April 25th to be hosted by Dr. Claire Barber, Dr. Glen Hazlewood and Dr. Karine Toupin April.

Newsletter – March 2021

This month we continue informing you about the rollout of the COVID-19 vaccine which is currently underway and what this means to many people living with rheumatic diseases. Read more.

Newsletter – February 2021

This month CAPA Board members were involved in the guideline panel discussions on the new COVID-19 vaccination recommendation from the Canadian Rheumatology Association, attended and participated in the annual 2021 Canadian Arthritis Research Conference, contributed as panel moderators and presenters, and many more.

Newsletter – January 2021

Welcome to 2021! "The 2020 was a year like no other where our homes have become the focus of our lives, our workplace, a classroom, and our sanctuarys", said the CAPA President Linda Wilhelm. January 2021 had been a very busy start of the new year for CAPA team, as we have been engaged in the development of the COVID-19 vaccine decision aid, writing a letter to NACI and public health officials across Canada, providing patient input to CADTH submissions for new drugs and many more.

Newsletter – December 2020

2020 has been a challenging year for so many of us! As CAPA team, we have tried our best to support the arthritis community throughout the pandemic by addressing drug shortages, developing evidence-based resources, hosting a virtual fashion show and many more. To end the year on a lighter note, the CAPA Board of Directors wish you the best holiday season and best of luck in the year ahead!

Newsletter – November 2020

This month CAPA has introduced its #ArthritisThenNow infographic designed to describe how arthritis treatments and life has changed for people living with inflammatory arthritis over the last 20 years! Read more about many other activities and projects we have been involved into!

Newsletter – October 2020

This month CAPA has teamed up with CreakyJoints in the United States and Australia to bring our readers special content devoted to the World Arthritis Day for them to learn what it’s like to live with arthritis during the pandemic from a global perspective.

Newsletter – September 2020

In this newsletter edition, we are celebrating the September Arthritis Awareness Month and presenting our new video with Board member and fashion designer, Michael Kuluva, as he speaks with 2nd VP, Laurie Proulx and...much more in this edition. Join us in raising awareness about arthritis!

When you live with arthritis,
information is your most important tool.

The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.

We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.