CAPA and Take a Pain Check Foundation Presenting Poster at ACR
On Saturday, November 12, Natasha Trehan, founder of Take a Pain Check Foundation and CAPA presenting a virtual patient perspectives poster at the American College of Rheumatology on . Read our poster to learn more about our work and organizations.
Support Recruitment of Diverse Women for Dr. Gagliardi’s Arthritis Study
University Health Network is looking for diverse women with OA to participate in Dr. Anna Gagliardi’s Arthritis Study. Learn how.
Navigating the workplace with arthritis: Twitter Spaces Event
Join us to mark the World Arthritis Day in our first-ever Twitter Spaces event about navigating the workplace with arthritis on October 12 at 9 pm EDT!
University of Calgary Invites to Participate in Patient Preference Survey on Reducing RA Meds
Are you taking a biologic or targeted synthetic medication for rheumatoid arthritis? Ever considered reducing your medication? Share your thoughts in this University of Calgary survey.
Let’s make Rheum for Youth!
Together with Take a Pain Check Foundation, we are pleased to launch a survey to better understand the needs of youth and young adults with rheumatic disease. Please take a few minutes to complete our short survey (only 5-10 minutes) so we can develop educational resources and advocacy plans to meet your needs.
“Moving More” Virtual Conversation Series by University of British Columbia
UBC researchers invite people with arthritis and caregivers to participate in virtual conversation series to map out how to support older people with arthritis and early stage frailty to live a healthy 24-hour day.
What is It like Living with Chronic Pain?
Listen to CAPA's President Linda Wilhelm sharing abour her experience living with Rheumatoid Arthritis and her words of wisdom how to cope with chronic pain.
CRA Rheumatoid Arthritis Clinical Practice Guidelines Update
CAPA Board members participate in updating the Canadian Rheumatology Association rheumatoid arthritis clinical practice guidelines. Read more!
Newsletter – February 2023
February was a very busy month for CAPA attending and presenting at the CRA Annual Scientific Meeting in Quebec City on February 8-11. Our very own Laurie Proulx presented at a workshop on shared decision making and at a workshop about reproductive health. Read more here.
Newsletter – January 2023
Happy New Year 2023! CAPA's President reflects on the important work the Canadian Arthritis Patient Alliance has done over the past two decades. Last year CAPA launched a new patient partner in research training program and the group has now completed their training modules. Read more in this edition.
Newsletter – November 2022
This month CAPA has been engaged in various activities and events from developing a Make Rheum for Youth survey, policy brief on Canada Disability Benefit to presenting a poster on patient perspectives at a recent virtual ACR meeting.
Newsletter – October 2022
This month we have been getting ready to celebrate the World Arthritis Day; formed the first CAPA's patient partners in research cohort, conducted successful Coffee for CAPA fundraising campaign and many more!
Newsletter – September 2022
Join CAPA to celebrate the Arthritis Awareness Month as we have launched our first ever fundraiser: Coffee for CAPA in partnership with Sparkplug coffee. Place an order for your favourite CAPA blend today! Help us to further advocate for the needs of people living with arthritis and their families.
Newsletter – Summer 2022
This summer we have been engaged in preparation of a patient input submission for Benlysta for lupus nephritis, development of the recommendation and patient decision aid on mediaction tapering and many more.
Newsletter – June 2022
June has been a busy month for CAPA engaged in development of a Methotrexate resource to help kids with arthritis and a pain tip sheet for people living with rheumatic disease. CAPA announced a Call for patient partners in research and launched a research training program for new patient partners.
Newsletter – May 2022
This month CAPA attended and live-tweeted fom the Candian Pain Society’s annual scientific meeting, shared experience with a COVID-19 trial in a Facebook live hosted by Clinical Trials Ontario and has been preparing to present a Baring it all Report at the EULAR Congress. Read more in this issue.
When you live with arthritis,
information is your most important tool.
The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.
We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.