CAPA news

Health Canada and You

By Laurie Proulx People living with arthritis have to take medications (often many!) to control their disease. I’ve had to take medications for the last 20 years in order to control the Juvenile Idiopathic Arthritis (JIA) that struck me when I was 14 years old. I have usually taken for granted that these medications go […]

Inclusion is a Right

I don’t remember a lot of the battles my mom had to fight before I could take over to fight my own, but I know one thing: she always made sure I would grow up in a regular environment and that’s probably the greatest gift she ever gave me. I have juvenile arthritis, so I […]

CAPA newsletters

Newsletter – February 2023

February was a very busy month for CAPA attending and presenting at the CRA Annual Scientific Meeting in Quebec City on February 8-11. Our very own Laurie Proulx presented at a workshop on shared decision making and at a workshop about reproductive health. Read more here.

Newsletter – January 2023

Happy New Year 2023! CAPA's President reflects on the important work the Canadian Arthritis Patient Alliance has done over the past two decades. Last year CAPA launched a new patient partner in research training program and the group has now completed their training modules. Read more in this edition.

Newsletter – November 2022

This month CAPA has been engaged in various activities and events from developing a Make Rheum for Youth survey, policy brief on Canada Disability Benefit to presenting a poster on patient perspectives at a recent virtual ACR meeting.

Newsletter – October 2022

This month we have been getting ready to celebrate the World Arthritis Day; formed the first CAPA's patient partners in research cohort, conducted successful Coffee for CAPA fundraising campaign and many more!

Newsletter – September 2022

Join CAPA to celebrate the Arthritis Awareness Month as we have launched our first ever fundraiser: Coffee for CAPA in partnership with Sparkplug coffee. Place an order for your favourite CAPA blend today! Help us to further advocate for the needs of people living with arthritis and their families.

Newsletter – Summer 2022

This summer we have been engaged in preparation of a patient input submission for Benlysta for lupus nephritis, development of the recommendation and patient decision aid on mediaction tapering and many more.

Newsletter – June 2022

June has been a busy month for CAPA engaged in development of a Methotrexate resource to help kids with arthritis and a pain tip sheet for people living with rheumatic disease. CAPA announced a Call for patient partners in research and launched a research training program for new patient partners.

Newsletter – May 2022

This month CAPA attended and live-tweeted fom the Candian Pain Society’s annual scientific meeting, shared experience with a COVID-19 trial in a Facebook live hosted by Clinical Trials Ontario and has been preparing to present a Baring it all Report at the EULAR Congress. Read more in this issue.

When you live with arthritis,
information is your most important tool.

The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.

We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.