CAPA news

Cricoarytenoid Arthritis

by: Laurie Proulx Like so many of you, I’ve learned to deal with this disease. I was diagnosed with Juvenile Idiopathic Arthritis at the age of 14. Hardly a day goes by where I don’t feel pain in some part of my body. But I’ve learned that there are always a few more surprises this […]

Demonstrators demand better transit access in Montreal

by Marie-Eve Veilleux Montreal is one of the least accessible cities in Canada. Among the challenges faced by disabled people is that the metro system only has 7 accessible stations out of 68, all located on one single metro line (see map of the accessible metro). At the current rate, the Montreal Metro would be fully accessible by 2090. [&hell

Health Canada and You

By Laurie Proulx People living with arthritis have to take medications (often many!) to control their disease. I’ve had to take medications for the last 20 years in order to control the Juvenile Idiopathic Arthritis (JIA) that struck me when I was 14 years old. I have usually taken for granted that these medications go […]

Inclusion is a Right

I don’t remember a lot of the battles my mom had to fight before I could take over to fight my own, but I know one thing: she always made sure I would grow up in a regular environment and that’s probably the greatest gift she ever gave me. I have juvenile arthritis, so I […]

CAPA newsletters

Newsletter – November 2023

This month, we welcomed nine patient partners to the introductory training program and fourteen patient partners to the intermediate/advanced training program; presented a poster at the American College of Rheumatology Convergence Meeting and took part in developing CADTH submission on bimekizumab for treatment of AnkSpond and PsA.

Newsletter – October 2023

This month, CAPA has announced a call to all youth and young adults living with rheumatic diseases to join a new Youth Committee to help develop educational resources and planned an educational webinar about COVID-19 and other vaccines at its upcoming AGM on November 4. Read more.

Arthritis Awareness Month Initiatives

CAPA has been busy with various activities for the September Arthritis Awareness Month including a CAPA for Coffee Fundraiser from September 1 to 30.

Newsletter – August 2023

This month, CAPA has launched two training programs accepting applications until September 30th; got involved in The Life Hacks and Gadget Project and participated in a panel on use and misuse of research in the Covid-19 environment and its health inequalities. Read more.

Newsletter – June 2023

This month we were reflecting on what we can do to better support people with arthritis that are part of the 2SLGBTQQIA+ community, launched the survey about patients' experiences with Patient Support Programs and continued our Pain Talks series with an interview by Chronic Eileen (Eileen Davidson) about what it’s like to live with chronic pain.

Newsletter – May 2023

It has been a busy month for CAPA being involved in the drug policy submissions as a member of the Best Medicines Coalition, attending the Canadian Pain Society (CPS) Annual Scientific Meeting and Canadian Agency for Drugs and Technologies in Health (CADTH) Symposium. Read more in this issue.

Newsletter – April 2023

This month we have announced about readiness of a new cohort patient partners to join the research team. We have been updating our COVID-19 booster reseaource available on each province and met with the new patient group Canadian Autoinflammatory Network and many more.

Newsletter – March 2023

This month we have been busy updating COVID-19 resources and submitted a letter to NACI to relay concerns about people with inflammatory arthritis accessing COVID-19 vaccine boosters. Learn more about our work this month.

When you live with arthritis,
information is your most important tool.

The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.

We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.