This video presents Dr. Dawn Richards, CAPA's 1st Vice President, sharing her own and other people experiences in patient and public engagement as partners on research teams.
The Canadian Rheumatology Association (CRA) has developed a formal GRADE recommendation for Covid-19 vaccination in persons with autoimmune rheumatic disease. The recommendation focuses on the use of the 2 currently approved COVID vaccines: BNT 162b2 (Pfizer-BioNTech) and mRNA-1273 (Moderna). Click here to read the CRA Guideline.
A research team based out of the University of Toronto and the Bruyere Research Institute is learning about people’s experience with virtual primary care in Ontario. Researchers are seeking participants for a survey about their experiences with telephone or video appointments in primary care.
Solutions for Kids in Pain (SKIP) is a knowledge mobilization network based at Dalhousie University and co-directed by Children’s Healthcare Canada, and funded by the Networks of Centres of Excellence (NCE). Join the webinar on “Solutions for Kids in Pain (SKIP): Patients-Included Approach to Knowledge Mobilization” presented by t
The newborn and infant periods are important for determining long-term health and development. The Disability and Pregnancy Study (a research program) presents the new report that summarizes existing literature on the health outcomes of newborns and infants born to women with disabilities. These findings also suggest the need to consider what servi
Clinical trials show that COVID-19 vaccines are safe and effective. Should I get vaccinated? CRA, with input from CAPA, designed a Decision Aid tool to help those living with an autoimmune disease to decide with their healthcare provider what best would work for them.
"2020 was a year like no other where home has become the focus of our lives, our workplace, a classroom, and our sanctuary. As the vaccines roll out with the hope that it will return us to much missed activities, CAPA is hard at work clarifying the mixed messaging patients living with rheumatic disease are receiving." Read a message from our Presid
In preparation for the CADTH submission for a manufacturer’s drug Upadacitinib for the treatment of psoriatic arthritis (PsA), the Canadian Arthritis Patient Alliance (CAPA) and the Arthritis Society (TAS) developed a survey to hear directly from people living with psoriatic arthritis about their experiences with these conditions and any experi
This month CAPA attended and live-tweeted fom the Candian Pain Society’s annual scientific meeting, shared experience with a COVID-19 trial in a Facebook live hosted by Clinical Trials Ontario and has been preparing to present a Baring it all Report at the EULAR Congress. Read more in this issue.
This month, CAPA has presented the Youth led Instagram Live event about self-advocacy for youth with rheumatic diseases. provided feedback to the Minister of Health changes to the patented drugs pricing regulations and Health Canada's consultation on biosimilars.
This month CAPA has been busy with various activities including preparation to celebrate the Juvenile Arthritis Month engaging the youth with rheumatic disease experience a range of unique issues, like transitioning to adult health care, self-advocacy, and more.
This month CAPA attended the CRA virtual Annual Meeting, participated and presented at the Canadian Arthritis Research Conference, met with and interviewed leaders in rheumatology! Read more in this issue.
Welcome to 2022! "2022 is feeling a lot like 2021!" said CAPA President Linda Wilhelm. January 2022 had been a busy start of the new year for CAPA team, as we have been engaged in providing patient input to CADTH submission for new lupus drug, preparing for a poster presentation at the CRA annual meeting and many more.
This month CAPA has been participated in numerous events in support of the National Pain Awareness Week. Learn what we have done by reading our newsletter!
CAPA had been busy with various activities over the month of October including involvement in the release of the Baring It All final report, Fashion Show, compiling information on the 3rd dose vaccine access in provinces and many more.
Over the summer, CAPA had participated in the development of a CRA virtual care statement, voiced the patient perspective on proposed drug pricing changes on patients and did an extensive survey on sexual and reproductive health in collaboration with other patient groups. We had planned lots of fun activities for September, the Arthritis Awareness month!
When you live with arthritis,
information is your most important tool.
The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.
We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.