CAPA news

CAPA’s Feedback to VCAG Recommendations on Exceptions to Extended Dose Intervals for COVID-19 vaccines

CAPA wrote this letter due to concerns about the time delay that the National Advisory Council on Immunization (NACI) has deemed acceptable between first and second doses of vaccinations for people living with forms of inflammatory arthritis and who are on immunosuppressants.

Meet CAPA Board member – Emily Sirotich

We continue introducing our new Board members and invite you to listen to Emily Sirotich’s story. Emily is a patient partner and a current PhD student in Health Research Methodology at McMaster University. “The COVID pandemic really pushed the real impact that patients can have not only as participants in research but people who lead [&

New Arthritis+Patient App to Test

Please join us to try a new educational companion, a free, user-friendly tool Arthritis+Patient App that is designed to provide patient education and self-management. Learn more about its functionality and use here.

CAPA Webinar on Shared Decision Making on April 25th at 1 pm EDT

Join CAPA community for a webinar on Shared Decision Making on Sunday, April 25th at 1:00 pm EDT with Drs. Claire Barber, Glen Hazlewood and Karine Toupin April to learn how it can help you build a better relationship with your health care provider.

Arthritis, COVID-19 and vaccines

CAPA's Medical Advisory Committee is sharing their perspective on Arthritis, COVID-19 and available vaccines. Listen to the full video conversation with Drs. Janet Pope, Carter Thorne and Cheryl Barnabe.

Arthritis and COVID-19

CAPA is having a conversation on Arthritis and COVID-19 pandemic with its Medical Advisory Committee, Drs. Janet Pope, Carter Thorne and Cheryl Barnabe. Listen to a full video chat.

Patient Engagement in Research: The Why and How

This video presents Dr. Dawn Richards, CAPA's 1st Vice President, sharing her own and other people experiences in patient and public engagement as partners on research teams.

CRA Recommendation for Covid-19 Vaccination in Persons with Autoimmune Rheumatic Disease

The Canadian Rheumatology Association (CRA) has developed a formal GRADE recommendation for Covid-19 vaccination in persons with autoimmune rheumatic disease. The recommendation focuses on the use of the 2 currently approved COVID vaccines: BNT 162b2 (Pfizer-BioNTech) and mRNA-1273 (Moderna). Click here to read the CRA Guideline.

CAPA newsletters

Newsletter – January 2023

Happy New Year 2023! CAPA's President reflects on the important work the Canadian Arthritis Patient Alliance has done over the past two decades. Last year CAPA launched a new patient partner in research training program and the group has now completed their training modules. Read more in this edition.

Newsletter – November 2022

This month CAPA has been engaged in various activities and events from developing a Make Rheum for Youth survey, policy brief on Canada Disability Benefit to presenting a poster on patient perspectives at a recent virtual ACR meeting.

Newsletter – October 2022

This month we have been getting ready to celebrate the World Arthritis Day; formed the first CAPA's patient partners in research cohort, conducted successful Coffee for CAPA fundraising campaign and many more!

Newsletter – September 2022

Join CAPA to celebrate the Arthritis Awareness Month as we have launched our first ever fundraiser: Coffee for CAPA in partnership with Sparkplug coffee. Place an order for your favourite CAPA blend today! Help us to further advocate for the needs of people living with arthritis and their families.

Newsletter – Summer 2022

This summer we have been engaged in preparation of a patient input submission for Benlysta for lupus nephritis, development of the recommendation and patient decision aid on mediaction tapering and many more.

Newsletter – June 2022

June has been a busy month for CAPA engaged in development of a Methotrexate resource to help kids with arthritis and a pain tip sheet for people living with rheumatic disease. CAPA announced a Call for patient partners in research and launched a research training program for new patient partners.

Newsletter – May 2022

This month CAPA attended and live-tweeted fom the Candian Pain Society’s annual scientific meeting, shared experience with a COVID-19 trial in a Facebook live hosted by Clinical Trials Ontario and has been preparing to present a Baring it all Report at the EULAR Congress. Read more in this issue.

Newsletter – April 2022

This month, CAPA has presented the Youth led Instagram Live event about self-advocacy for youth with rheumatic diseases. provided feedback to the Minister of Health changes to the patented drugs pricing regulations and Health Canada's consultation on biosimilars.

When you live with arthritis,
information is your most important tool.

The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.

We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.