Knowledge Transfer and Exchange (Dr. Tara Packham, McMaster University) The School of Rehabilitation Sciences (SRS) and School of Nursing at McMaster University offer a joint course in 'Knowledge Transfer and Exchange'. All PhD students in the SRS are...
We are pleased to welcome and announce that we have recruited nine patient partners to the introductory training program and fourteen patient partners to the intermediate / advanced training program. We launched these training programs during the summer of 2023 with...
CAPA is a not-for-profit organization made up of and by people living with arthritis. We support people living with arthritis by providing education and support and advocating to government to ensure policies meet the needs of our community. We also act as advisors or...
This new cohort have received formal and informal training to support them in being a patient partner in research. You can learn more about this capacity building training program by reading this blog post, now available on the Canadian Institutes of Health Research –...
Get to know CAPA’s first Patient Partners Cohort!
Meet Dr. Cheryl Barnabe: Making a difference for Indigenous people with rheumatic conditions (by Laurie Proulx) Did you know that some forms of arthritis, like Rheumatoid Arthritis, Lupus and Juvenile Idiopathic Arthritis, are more common in Indigenous people? Health...
Meet Dr. Bindee Kuriya: Helping rheumatic disease patients with matters of the heart (by Laurie Proulx) Early in her career, Dr. Bindee Kuriya noticed that many people with rheumatic diseases were experiencing cardiovascular issues – known today to be caused by...
The Research team at the Interdisciplinary Centre for Health & Society, University of Toronto Scarborough and Azrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, led by Lesley A. Tarasoff, PhD, Postdoctoral Research Fellow is sharing...
The next generation of rheumatology is well in hand with Dr. Glen Hazlewood leading the way. Dr. Hazlewood decided to become a rheumatologist late in his training when he took a rheumatology elective, a field he found intellectually challenging. He was...
Dr. Karine Toupin-April’s first experiences with healthcare began as a patient. She has lived with asthma since she was a child and spent a great deal of time in emergency rooms, doctors’ offices, and with health care professionals. These experiences...
At the beginning of his career, Dr. Ed Keystone originally set his sights on studying immunology and allergy. Lucky for us, he worked with the “fathers of rheumatology” in a lab when his interest in rheumatology began to sparkle. He was selected for a fellowship in...
CAPA is a not-for-profit organization made up of and by people living with arthritis. We support people living with arthritis by providing education and support and advocating to government to ensure policies meet the needs of our community. We also act as advisors or...
This new cohort have received formal and informal training to support them in being a patient partner in research. You can learn more about this capacity building training program by reading this blog post, now available on the Canadian Institutes of Health Research –...
CAPA's Board member Emily Sirotich took part in the recent All-Virtual ACR Convergence 2020 Meeting on November 5-9, 2020, having submitted a number of abstracts and provided poster presentations as part of The COVID-19 Global Rheumatology Alliance (GRA) Patient...
You have heard about clinical trials, but are unsure about what they are, and what it means to participate. This infographic has been developped by Clinical Trials Ontario to help navigate. It provides an explanation of what clinical trials are, the...
Clinical trials are an key part of the research process. If you’re thinking about participation in a clinical trial, CAPA encourages you to read up on clinical trials and make a decision that is right for you. Below are some resources to help get you started where CAPA has been involved.
CAPA believes that the lived experience provided by individuals living with a disease is critical - and participating in research activities helps ensure this voice is heard. CAPA participated in the development of 2 presentations that support patient...
Included here is a collection of resources that date back to when the Canadian Arthritis Network, and to which a number of CAPA members contributed. Patient Engagement Quality Guidance - CAPA participated on the working group of the Patient Focused Medicines...
The Canadian Arthritis Patient Alliance (CAPA) works with various groups in the arthiritis community to ensure the voice of people living with arthritis is heard and to bring you up-to-date information on issues that affect the arthritis community. We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government.
We keep Canadian people living with arthritis and their support groups understand more about their disease and have a voice in managing it.
